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ABSTRACT INFORMATION
Presenter Information:
Presenter 1: Name: Karin Neidt
Affiliation: Washington State Department of Health, Office of Maternal and Child Health
Karin Neidt is the Early Hearing Loss Detection, Diagnosis, and Intervention (EHDDI) Follow-up Coordinator for the State of Washington. In that capacity, Karin manages the newborn hearing screen follow-up and tracking/surveillance system. Karin previously worked for two years with the Washington State Department of Health's Newborn Screening Program, consulting health care providers and families in the appropriate follow-up for infants with abnormal screening results. Karin received her Masters in Public Health from the University of Washington in Seattle, Washington, and her Bachelors degree in Microbiology from Montana State University in Bozeman, Montana.
Presenter 2: Name: Debra Lochner Doyle
Affiliation: Washington State Department of Health, Office of Maternal and Child Health
Ms. Doyle is the State Coordinator for Genetic Services and the Manager of the Genetic Services Section for the Washington State Department of Health. She is board certified by both the American Board of Medical Genetics and the American Board of Genetic Counseling. Ms. Doyle received her B.S. in genetics from the University of Washington and her M.S. in human genetics and genetic counseling from Sarah Lawrence College in New York. Before accepting her current position, she held positions at Memorial Sloan-Kettering Cancer Research Center, Jones' Institute for Reproductive Medicine, Children's Hospital of the King's Daughters, and Women and Infant's Hospital Prenatal Diagnosis Center. Ms. Doyle, is a past President of the National Society of Genetic Counselors and is a founding member of the Coalition of State Genetics Coordinators.
Author Information:
Author 1: Name: Karin Neidt
Affiliation: Washington State Department of Health, Office of Maternal and Child Health
Author 2: Name: Teresa Vollan
Affiliation: Washington State Department of Health, Office of Maternal and Child Health
Author 3: Name: Debra Lochner Doyle
Affiliation: Washington State Department of Health, Office of Maternal and Child Health
Abstract Information:
Title: Why Aren’t Infants Getting Audiologic Evaluations (Or Are They)? - Results from a parent survey conducted by the Washington State EHDDI Program
Primary Track: 5-Follow-up, Tracking, and Data Management
Keyword(s): audiology, lost to follow-up, parent survey

Abstract:

The Washington State Early Hearing-loss Detection Diagnosis and Intervention (EHDDI) program has mirrored the success shown nationally in screening infants for hearing loss. In 2007, greater than 95% of newborns followed by the Washington EHDDI program were screened for hearing loss; the majority of whom (95%) were reported as screened before one month of age. However, the challenge of ensuring that infants who do not pass their hearing screen(s) receive audiologic evaluations remains. Of 720 infants born in 2007 who were referred for audiologic evaluation after not passing one or more hearing screens, 242 (34%) did not have a reported audiologic evaluation. The Washington EHDDI program conducted a parent survey in an effort to better understand the barriers families face when bringing their infants in for an audiologic evaluation. Surveys were sent to mothers or guardians of infants who did not pass hearing screening and were referred for audiologic evaluation. For completed surveys, parental experience and potential barriers were compared between families who did bring their infant to the audiologist for an evaluation and those that did not. Birth certificate and EHDDI data were also used to examine differences in demographics and hearing screening histories between these two groups. This presentation will discuss findings from the study and the resulting strategies the EHDDI program plans to implement to increase the number of infants who receive diagnostic evaluations after referral to audiology.
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