2023 Early Hearing Detection & Intervention Conference

March 5-7, 2023 • Cincinnati, OH

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2/28/2017  |   11:30 AM - 12:00 PM   |  How Many Clicks Does It Take to Get to the Center of a Website? A Review of Online Part C Resources from a Parent’s Perspective.   |  Hanover E

How Many Clicks Does It Take to Get to the Center of a Website? A Review of Online Part C Resources from a Parent’s Perspective.

PEW estimates that 72% of internet users go online for health information and with the expansion of mobile technologies, the internet has become an essential resource for many Americans (1) . Moreover, with early identification many parents look to State Part C agencies to provide the information and support they need as they look for ways to help their children. Therefore, its essential that parents of children who are D/HH can find accurate and useful information from legitimate sources that will lead to timely, high quality EI services rather than relying on incomplete or non-state-specific information from private websites. As part of a MCHB grant to review the state of Early Intervention services for children who are D/HH across the US, EI SNAPSHOT (Early Intervention Systemic Nationwide Analysis of Programs’ Strengths, Hurdles, Opportunities, and Trends) conducted a review of the Part C websites for each state and US territory. Parents of children who are D/HH were recruited to review Part C websites and to search for commonly needed information, evaluate the usability and friendliness of each site, and to assess their cultural awareness (essential for an increasingly diverse world). Results of the reviews found that while much of the information parents may search for was on state Part C websites, it was not necessarily easy to find and parents were not able to find information specific to hearing in nearly half of the reviews. Furthermore, when asked to “Google” a set of search phrases such as “ help for my deaf baby” Part C and EHDI websites were listed on the first page of results less than 25% of the time. This presentation will review the results and discuss ways to improve the usability and utility of online resources for parents. (1) http://www.pewinternet.org/fact-sheets/health-fact-sheet/

  • To find out about the resources available through State Part C websites
  • To find ways to improve the accessibility, usefulness and usability of State Part C resources
  • To help promote online resources available through State Part C agencies

Presentation:
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Presenters/Authors

Diane Behl (), NCHAM, diane.behl@usu.edu;
Diane Behl is a Senior Faculty member at the National Center for Hearing Assessment and Management. She facilitates telehealth learning communities and is a co-investigator for cost-effectiveness studies. She has expertise in evaluating the effectiveness of service coordination provided via Part C Early Intervention and Maternal and Child Health programs. Diane was a primary researcher on the EI SNAPSHOT study.


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Sara Doutre (), National CMV Foundation, saradoutre@gmail.com;
Sara Doutre is a PHD student studying sociobehavioral epidemiology at Utah State University. She has an MA in education policy studies and a BS in elementary and special education. A former special education teacher, she currently consults with state departments of education and health on special education policy. Her six-year-old daughter is deaf due to congenital cytomegalovirus.


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Heather Mariger (), Utah State University, heather.mariger@usu.edu;
Heather Mariger is a research scientist with the NCHAM at Utah State University where she is currently working on the Early Intervention Systemic Nationwide Analysis of Programs’ Strengths, Hurdles, Opportunities, and Trends (EI SNAPSHOT) project. Heather comes to NCHAM through an unusual route. Classically trained in Culinary Arts and Hospitality she has worked and studied across both the US and Europe. While working on her Masters Degree at Kansas State University, she became intrigued by the possibilities that the Internet promised for higher education. These interests led her to Utah State where, while working on her Doctorate in Instructional Technology, she became involved in disability research – and has never looked back. She has worked across a wide variety of assignments including projects to: create videos, websites and a curriculum to teach parents and paraprofessionals about the use of naturalistic interventions in teaching young children; develop a set of indicators and resources to promote web accessibility in higher education; and design training and protocols for a large-scale intervention/control study on the effect of an additional school 25 days on children in K-3rd grade. She is currently working on a study to help understand the state of early intervention services for children who are D/HH and their parents across the US. Her interests include Usability, Accessibility, the use of internet and mobile technologies to promote parent services and support, and Inclusive Tourism/Hospitality.


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