19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
Characterizing Deaf Children’s Early Communication Services: An Online Parent Survey
Community surveys provide overviews of population demographics, identifies service gaps, and supports need-based research. One ever-evolving need is to understand how well early intervention (EI) services support deaf and hard of hearing (DHH) children as they are identified and then transitioned into EI programs. The risk of language deprivation amongst DHH children is a prominent issue addressed by the Early Hearing Detection and Intervention (EHDI) program and its “1-3-6” goals. EHDI’s most recent national survey data reports that 67.3% of identified children had transitioned into early intervention services by 6 months of age (2019), but does not report on the actual efficacy of services. To augment this data, two surveys have further explored family experiences post-identification. The National Center for Hearing Assessment and Management (NCHAM) recently surveyed families’ experiences in the EI system (2017). This survey was distributed to 321 families in 10 states and serves as an informative snapshot that warrants replication and expansion. Importantly, the NCHAM survey reports that families express a need for even more services. Further, Gallaudet’s Regional and National Summary Report (2013), reported almost 7,000 children had not been identified with hearing loss via newborn hearing screening, suggesting that many children still end up at risk of not receiving EI services in time for its intended benefit, and indicates a need to survey families with children beyond the age of 5. We aim to distribute a survey for families of deaf children in order to replicate, explain, and expand on previous results. This survey will include a focus on family ratings of experiences when receiving services for their child and will also bring into focus gaps in the early identification system where deaf children are going unnoticed, hoping to improve these services. This poster will discuss our methodological approach and preliminary survey results.
- Understand parent experiences with hearing identification and service provision
- Expand on previous surveys of EI experiences
- Explore experiences of families who were not identified at birth
Poster:
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Presenter: Tess Rademacher
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.