2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/10/2020 | 11:00 AM - 11:30 AM | A Day in the Life of a Parent: What’s it like Raising a Deaf Kid? | Chouteau A
A Day in the Life of a Parent: What’s it like Raising a Deaf Kid?
There are reality shows about dance moms, bachelors and bachelorette's, models, even Ozzie and the Kardashian's. Where is the show about Raising a Deaf kid? It could be a show with a running time of 18 years. This session will give you a peak at the day in the life of a parent who has walked this walk for 18 years! The presenter is a parent of a now 18-year-old daughter who is profoundly deaf. What is that initial feeling when a parent receives such a permanent diagnosis? What is it like making all those choices parents must make. What are the highs and lows we go through? What did providers do well and not so well? As the presenter reflects on the past 18 years, she is humbled to share this all with you. Her daughter is off to college in the fall, a new chapter will open. Is she ready? Did the parent make the right choices, do the right things, advocate enough, push enough, model enough, or just do enough? Only time will tell, come and learn what it’s like for a parent, the hour you spend with their child is only one of 24 in any given day, understanding the parent perspective is invaluable.
- Participants will travel through a whirlwind 18 year recap of raising a kid who is deaf
- Attendees will gain an understanding of the hard decisions parents must make
- Interventionists can hear from the source what to do and what they may not want to do when working with families
Presentation:
21060_12514AndreaMarwah.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Andrea Marwah
(), IL Hands & Voices Guide By Your Side, executivedirector@ilhandsandvoices.com;
Andrea Marwah received her BA degree in Psychology from North Central College in Naperville, Illinois. Since her daughter was diagnosed with hearing loss in 2002, she has taken a special interest in educating parents and professionals on matters concerning ADA (Americans With Disabilities Act), IDEA (Individuals with Disabilities Education Act) - special education rights, and advocacy for students who are deaf or hard of hearing. Andrea presents both locally and nationally on matters pertaining to advocacy and IDEA; deafness/hearing loss when combined with other disabilities; the impact of deafness/hearing loss; socialization and many other topics surrounding parenting and working with children who are deaf and hard of hearing. She works for the Illinois Department of Human Services, Illinois School for the Deaf as an outreach trainer and consultant for families and professionals who work with children who are deaf, hard of hearing, blind, visually impaired or deaf-blind. She is also a parent advocate supporting families in Illinois at their child’s IEP meeting or behind the scenes preparing them to attend the meeting and advocate themselves. Andrea is the Executive Director at Illinois Hands & Voices and has been a leader with them since 2010, began as the IDEA liaison for the Guide By Your Side Program in 2009 where she provides unbiased information and one-on-one advocacy and IDEA support to families who have children who are deaf/hard of hearing and is a national trainer for the Hands & Voices ASTra Training Program and a member of the Hands & Voices speakers bureau. She works closely with Designated Service Coordinators providing group training and individual consulting. These are trained individuals who work directly with infants and toddlers in Illinois birth to three who have a diagnosis involving vision, hearing or a combination of both in her state early intervention program. Andrea works as a liaison with the Early Intervention Training Program on issues surrounding deafness and hearing loss. She sits on numerous committees both locally and nationally. Andrea also served for six years on the Advisory Commission on Disabilities in her home town of Naperville, where she lives with her husband Ajay and 3 children Samantha, Julia and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.