2022 Early Hearing Detection & Intervention Virtual Conference

March 13 - 15, 2022

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4/15/2014  |   9:40 AM - 10:10 AM   |  Assessing State EHDI Programs’ Capability for Standards-Based Health Information Exchange   |  Grand Ballroom 3   |  9

Assessing State EHDI Programs’ Capability for Standards-Based Health Information Exchange

Public health agencies have long recognized the need to more effectively integrate and exchange data with their community partners. Recent federal legislative health initiatives have made this integration a priority. There is a strong push among health care partners, such as public health agencies, pediatricians, and hospitals to exchange early hearing test results electronically. With universal newborn screening policies, early hearing detection and intervention (EHDI) programs have dramatically increased the number of initial screenings. However, challenges remain with children failing to receive follow up screenings and insufficient data exchange for sharing care plan information across birthing centers, public health, and pediatricians. These challenges remain despite important advances in establishing EHDI data exchange standards. EHDI is one of the most active public health domain areas in the development and testing of standards for the exchange of information between public health and health care. These standards, based on interoperability approaches established by HL7 and Integrating the Healthcare Enterprise (IHE) standards bodies, specify the exchange of screening test results, care plans, and clinical quality measures. Yet many state EHDI programs lack the capability to send or receive these standard messages. In this presentation the authors will share an overview of HL7 and IHE EHDI standards and findings from a capability maturity model-based assessment of state EHDI programs’ current information exchange capability. The assessment provides EHDI programs guidance toward higher levels of program capability to effectively utilize data standards for exchange with clinical health care providers and improve newborn screening outcomes. Specific findings will characterize the current state of information technology use in EHDI, state EHDI programs’ role in jurisdictional health information exchanges (HIE) and Meaningful Use regulations, and approaches for establishing conditions for interoperable technology including policies, governance, workforce development, and training.

  • Recognize steps state EHDI programs can take to increase their capability to exchange electronic information with clinical partners.
  • Recognize HL7 and IHE standards for EHDI data exchange between public health and clinical entities.

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Presenters/Authors

James Jellison (Primary Presenter,Author), Public Health Informatics Institute, jjellison@taskforce.org;
As an analyst for the Public Health Informatics Institute, Jim collaborates with public health agencies and their partners to assess informatics needs and recommend approaches to apply information effectively. Areas of expertise include surveillance, epidemiology, business process improvement, systems analysis, and health information technology standards. Jim is an alumnus of the CDC Public Health Informatics Fellowship Program where he worked with the National Environmental Public Health Tracking Network. Prior to the fellowship, Jim worked for the Nashville TN local public health agency developing informatics infrastructure for geographic information systems, infectious disease surveillance, emergency preparedness, and environmental health. Jim holds a Master of Public Health degree concentrating in Epidemiology from East Tennessee State University and a Bachelor of Arts degree in the Social Sciences from Michigan State University.


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