2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/20/2018 | 11:00 AM - 12:00 PM | Parents as EHDI Partners in Follow Up: Effectiveness of a Quality Improvement Model | Agate A-C
Parents as EHDI Partners in Follow Up: Effectiveness of a Quality Improvement Model
In Texas half of infants who refer on the newborn screening fail to transition to diagnostic assessment and early intervention within the prescribed 1-3-6 timeline to achieve optimal outcomes. The Texas Department of State Health Services has partnered with Texas Hands & Voices to develop a quality improvement model to target Loss-to-Follow-Up. The plan-do-study-act cycle has utilized professional parent consultants as “Follow Through Guides” to connect with EHDI families that fail to transition to diagnosis or early intervention. Each at-risk family is contacted by the parent of a child who is deaf/hard-of-hearing to facilitate follow up, and subsequent connections are made with providers to reinforce best-practices. An overview of the project development and implementation is provided, as well candid discussion of the challenges of agency-organization partnerships. The service delivery model created by the Follow Through Guide project effectively leverages parent-to-parent connections to support the continuum of care for EHDI families and facilitates timely transitions to diagnostic and early intervention services. Results of the three year project are reviewed. Data from 2500 families summarize barriers to timely follow-up including challenges inherent in the system and lives of families. Data from 150 providers summarize challenges to compliance based on protocol and management. The project model demonstrates the effectiveness of state agencies partnering with parent organizations, and illustrates unique contributions parents can make to EHDI programming and leadership. Outcomes include just-in-time supports for families and system-level changes that increased the number of families transitioning to early intervention by the target age of six months.
- Participants will be able to describe a service delivery model that uses professional parent guides in the EDHI continuum of care.
- Participants will identify barriers to EHDI follow up and potential parent driven supports.
- Participants will be able to list appropriate steps to developing an effective partnership between a parent organization and state agency.
Presentation:
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Handouts:
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Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Sarah Wainscott
(), Texas Woman's University, swainscott@twu.edu;
Sarah Wainscott is an Associate Professor at Texas Woman’s University, with a background in both audiology and deaf education, and supports parent outreach and provider training for Texas Hands & Voices. Sarah is also the parent of two children who are deaf.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.