2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/10/2020 | 11:00 AM - 12:00 PM | Maximizing Early Hearing Detection and Intervention (EHDI) Systems and Use of Data to Support Programs and Benefit Children Who are Deaf or Hard of Hearing | New York A
Maximizing Early Hearing Detection and Intervention (EHDI) Systems and Use of Data to Support Programs and Benefit Children Who are Deaf or Hard of Hearing
The early identification and enrollment into intervention of infants who are deaf or hard of hearing (D/HH) are key goals of EHDI programs. To help achieve the goals of early identification and intervention jurisdictions have implemented EHDI Information Systems (EHDI-IS), which are electronic tracking and surveillance systems. While the design and capabilities of the systems vary by jurisdiction, these systems serve as a tool to help programs ensure all infants are receiving recommended screening, diagnostic, and intervention services. These systems can also provide jurisdictions with a wealth of relevant information about key areas of interest (e.g., timeliness of services, reasons for loss to follow-up) that are relevant for program planning, stakeholder engagement, and evaluation.
In this session, attendees will learn how to strengthen their current EHDI-IS to meet the goals of early identification and enrollment and to support and advance their EHDI related work. The first part of the session will focus on EHDI-IS and include a discussion about the role of available EHDI functional standards, methods for improving data access and utilization, and ways to enhance usability of these systems. The second part of this session will focus on using the newborn hearing screening and follow-up information captured by the EHDI-IS. This will include a discussion about various ways to calculate key metrics, such as loss to follow-up, the use of data visualization to communicate key findings and engage stakeholders, and the role of EHDI data in program evaluation.
- Understand how EHDI-IS and the information captured can support the work of EHDI programs
- Describe the importance of tracking and surveillance in the early identification of infants who are deaf or hard of hearing
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Presenters/Authors
Marcus Gaffney
(), CDC, nzg9@cdc.gov;
Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.
ASHA DISCLOSURE:
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Nonfinancial -
Craig Mason
(), University of Maine, Craig_Mason@umit.maine.edu;
Craig Mason is the associate professor at university of Maine, and he is a consultant of the EHDI team, Centers for Disease control and Prevention
ASHA DISCLOSURE:
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Xidong Deng
(), Centers for Disease Control and Prevention, XDeng@cdc.gov;
Dr. Xidong Deng is a Health Scientist with the CDC EHDI Team. She holds a PhD. in Computer Science and Engineering from Pennsylvania State University. Dr. Deng’s work with the EHDI team includes helping to develop national EHDI data systems, identifying strategies for integration of EHDI systems with electronic health records and state based systems, evaluation of state based EHDI systems, and the identification of privacy and security solutions for information exchange between state public health registries. Her current interests are in ontology, controlled vocabulary and data standards, EHR and PHR systems, and evaluation of health information systems.
ASHA DISCLOSURE:
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Ashley Satterfield-Nash
(), CDC, asatterfield@cdc.gov;
Dr. Ashley Nash, DrPH is a research associate on the Early Hearing Detection and Intervention Team in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). Her work focus on project management and development activities.
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Suhana Ema
(), CENTERS FOR DISEASE CONTROL AND PREVENTION, vns0@cdc.gov;
Suhana Ema serves as an epidemiologist with the CDC EHDI Team. She is responsible for analyzing EHDI data and disseminating findings with jurisdictional EHDI programs and partners. She also provides technical assistance to jurisdictional EHDI programs to improve their program and tracking and surveillance work. She holds Master of Public Health degree from the University of Georgia. Suhana was born with severe to profound hearing loss on both ears and wears hearing aids. She is fluent in American Sign Language and lipreads well.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.