2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
4/15/2014 | 3:00 PM - 3:30 PM | Redefining EHDI National Surveillance Through Individual-Level Data: Results From the iEHDI Pilot Project | Grand Ballroom 7 | 6
Redefining EHDI National Surveillance Through Individual-Level Data: Results From the iEHDI Pilot Project
Individual-level data is a critical component in the effort to ensure children with hearing loss are identified and receive recommended follow-up services. The collection, reporting, and analysis of individual-level data makes it possible to more accurately document the services children are receiving and assess performance of the tracking and surveillance system. Programs at the local, state, and federal levels routinely collect data throughout the EHDI process but there are often differences in how this information is analyzed and reported. In addition, the data collected by the CDC are aggregated, which limits the ability to standardize reported data at the national level and conduct detailed analysis. To address these limitations, the CDC conducted a pilot project in collaboration with Indiana, Iowa, and Nebraska to redefine their approach to national surveillance through the collection of limited sets of individual-level data. The successful pilot has generated more complete and detailed information about the documentation of EHDI services and ways to improve state-based surveillance systems. Linking this information with other national data sets made it possible to identify specific factors impacting service provision at the state level. During this presentation the benefits of reporting individual-level data through this pilot and findings about how this data can be used to address loss to follow-up and other issues will be discussed.
- Describe the benefits of collecting, reporting, and analyzing individual-level EHDI data
- Explain how individual level data can be can be used to address loss to follow-up and other issues
Presentation:
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Presenters/Authors
Marcus Gaffney
(Author), CDC, nzg9@cdc.gov;
Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.
ASHA DISCLOSURE:
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Tammy O'Hollearn
(Co-Presenter), Iowa Department of Public Health, tammy.ohollearn@idph.iowa.gov;
Tammy O'Hollearn has been the EHDI Director for Iowa for the last 15 years. She has worked at the Iowa Department of Public Health since 2001. Ms. O’Hollearn provides administrative oversight, budget management, oversees surveillance of the newborn hearing screening and follow-up data base, as well facilitates the day-to-day management of activities to meet program goals. Ms. O’Hollearn works with many stakeholders in the community that assists Iowa EHDI in meeting program goals and strengthen the system of care for Deaf or hard-of-hearing infants. She directs data design, collection, program analyses and evaluation of the EHDI SOC. She serves on many state and national committees and facilitates the Iowa EHDI Advisory Committee. Tammy received a Link Associates Dorothy Schwartz Award in 1993 and ISHA Outstanding Service Award in 2009 and in 2016, the Iowa EHDI program received the EHDI Website of the Year Award.
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Xidong Deng
(Primary Presenter), Centers for Disease Control and Prevention, XDeng@cdc.gov;
Dr. Xidong Deng is a Health Scientist with the CDC EHDI Team. She holds a PhD. in Computer Science and Engineering from Pennsylvania State University. Dr. Deng’s work with the EHDI team includes helping to develop national EHDI data systems, identifying strategies for integration of EHDI systems with electronic health records and state based systems, evaluation of state based EHDI systems, and the identification of privacy and security solutions for information exchange between state public health registries. Her current interests are in ontology, controlled vocabulary and data standards, EHR and PHR systems, and evaluation of health information systems.
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Julie Schulte
(Co-Presenter), Indiana State Department of Health, juschulte@isdh.in.gov;
Julie Schulte, M.A., CCC-A is the EHDI Follow-up Coordinator for the Early Hearing Detection and Intervention (EHDI) at the Indiana State Department of Health. Julie has worked with the EHDI Program since 2005. Prior to working in the EHDI Program, Julie worked as an audiologist in several different capacities including a clinician on a cochlear implant team, a researcher examining the speech and language development of children with cleft lip and palate, an aural rehabilitationist working with deaf and hard of hearing children receiving early intervention services, and a clinical audiologist providing diagnostic audiology and hearing aid services.
ASHA DISCLOSURE:
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Kathy Northrop
(Co-Presenter), Nebraska Early Hearing Detection & Intervention Program, kathy.northrop@nebraska.gov;
Kathy is the Program Manager for the Nebraska Early Hearing Detection and Intervention Program, a position she’s held since August 2010. She has a Master’s degree in Community and Regional Planning from the University of Nebraska-Lincoln and is a certified planner by the American Institute of Certified Planners.
She is responsible for planning, coordinating, implementing, and monitoring the state-wide systems to carry out the NE-EHDI Program; coordinating activities relative to patient and professional education, technical assistance for hospitals development and implementation of quality assurance systems; the development of collaborations and systems for access to health, habilitative, and family support services; performing grant management activities including writing of competitive grant applications, preparation of budgets and reports, project management, administration of sub-contracts, and sub-grants, and staff supervision.
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Suhana Ema
(Co-Presenter,Author), CENTERS FOR DISEASE CONTROL AND PREVENTION, vns0@cdc.gov;
Suhana Ema serves as an epidemiologist with the CDC EHDI Team. She is responsible for analyzing EHDI data and disseminating findings with jurisdictional EHDI programs and partners. She also provides technical assistance to jurisdictional EHDI programs to improve their program and tracking and surveillance work. She holds Master of Public Health degree from the University of Georgia. Suhana was born with severe to profound hearing loss on both ears and wears hearing aids. She is fluent in American Sign Language and lipreads well.
ASHA DISCLOSURE:
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No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.