2022 Early Hearing Detection & Intervention Virtual Conference

March 13 - 15, 2022

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2/28/2017  |   3:00 PM - 3:30 PM   |  Addressing Loss to Follow-up Among Large States Through Collaboration   |  Grand Hall B

Addressing Loss to Follow-up Among Large States Through Collaboration

While clear progress has been made towards reducing loss to follow-up (LFU) and loss to documentation (LTD), some infants are still not receiving recommended follow-up services. Ensuring follow-up services are provided can be challenging, especially in states that have a large number of annual births because there are simply more infants requiring follow-up. To help address LFU/LTD the Centers for Disease Control (CDC), the Health Resources and Services Administration (HRSA), and the National Center for Hearing Assessment and Management (NCHAM) sought to engage states with over 150,000 annual births to discuss their successes and challenges in ensuring infants receive follow-up, procedures for collecting, analyzing, and reporting LFU/LTD data, and current follow-up protocols. The first step involved holding a meeting in Washington, D. C. on August 20115, which was attended by representatives from each of the five largest states (California, Florida, Illinois, New York, and Texas) to learn more about how each states address LFU/LTD. Following this successful meeting the states along with CDC, HRSA, and NCHAM have been collaborating to identify additional options to share lessons learned in addressing LFU/LTD. As part of the effort to ensure all deaf and hard of hearing infants are identified early and can receive intervention services the group has piloted a new CDC developed tool to assess the states’ EHDI Information System (EHDI-IS). This tool, the EHDI System Self-Evaluation Tool (ESSET), is intended to help jurisdictions identify the strengths and areas for further development of their EHDI-IS as it relates to an established set of Functional Standards. This session will discuss the progress and next steps of this group, including personal accounts from the participating states on how they used the ESSET and their perspective from this collaboration.

  • Understand the challenges of ensuring follow-up services in states with large numbers of annual births
  • Describe lessons learned that can help address loss to follow-up and loss to documentation among infants needing follow-up services.
  • • Assess the role of collaboration in reducing loss to follow-up and loss to documentation

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Presenters/Authors

Marcus Gaffney (), CDC, nzg9@cdc.gov;
Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.


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Ashley Satterfield-Nash (), CDC, asatterfield@cdc.gov;
Dr. Ashley Nash, DrPH is a research associate on the Early Hearing Detection and Intervention Team in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). Her work focus on project management and development activities.


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Doug Dittfurth (), Department of State Health Services, TEHDI, Doug.Dittfurth@dshs.texas.gov;
TEHDI Coordinator


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Ginger Mullin (), Illinois Department of Public Health, ginger.mullin@illinois.gov;
Dr. Mullin has a bachelors degree from the University of Northern Iowa and a masters degree in Audiology from The University of Memphis. From 1996-1999 she worked for the Arkansas Department of Health specializing in pediatric diagnostics and amplification as well as infant hearing screening. In 1999, Ginger moved to Illinois where she specialized for six years as a pediatric audiologists performing electrophysiologic measures and pediatric hearing aid fittings. During that time she received her Au.D. from The University of Florida. Ginger has presented regionally and nationally in the areas of pediatrics and newborn hearing. Ginger has been the EHDI co-coordinator for the Early Hearing Detection and Intervention Program since 2005. She is currently employed by the Illinois Department of Public Health . Ginger currently works closely with the UIC- Division of Specialized Care for Children to address screening, diagnosis and intervention issues.


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No relevant financial relationship exist.

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No relevant nonfinancial relationship exist.

Pam Tempson (), Florida Dept. of Health, Pam.Tempson@flhealth.gov;
Pam Tempson has been the Early Hearing Detection and Intervention Coordinator for Florida for three years. Prior to this she worked in the field of early intervention for 15 years. She has a Master's Degree in Counseling and a Bachelor's Degree in Social Work.


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Karl White (), Utah State University, karl.white@usu.edu;
Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.


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Lori Iarossi (), NYS DOH , lori.iarossi@health.ny.gov;
Lori Iarossi serves as the NY EHDI Coordinator within the Program Evaluation and Evidence-based Practices Unit in the Bureau of Early Intervention. She received her Bachelor of Science in Business Management and Economics from Empire State College. She has worked for the New York State Department of Health for 24 years, contributing to the development of many information systems to foster improved health outcomes for a diverse range of health issues including obesity prevention, HIV/AIDS, and worksite wellness.


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