2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/05/2019 | 3:00 PM - 3:30 PM | Cytomegalovirus (CMV) A Parent's Perspective | Narita A/B
Cytomegalovirus (CMV) A Parent's Perspective
Having a child with Cytomegalovirus (CMV) can be a daunting task. Come learn from two parents who have children affected by CMV and gain an introductory knowledge about the complex virus. You will walk away with knowledge about practical support systems for families who have children with congenital CMV and an understanding of how to reduce your risks.
- The purpose of this session is to have an understanding of what Cytomegalovirus is using non-clinical jargon.
- You will walk away with ways to cope with the stress of the diagnosis and treatments.
- You will understand how to reduce your risks of catching Cytomegalovirus.
Presentation:
18878_10307JamiFries.pdf
Handouts:
Handout is not Available
Transcripts:
18878_10307JamiFries.docx
Presenters/Authors
Jami Fries
(), Colorado Hands & Voices, Jami@co-hv.org;
Jami Fries lives in Mead, CO with her husband, Eric, and two boys, Liam and Nathan. Nathan is profoundly deaf due to congenital Cytomegalovirus (cCMV), has Type 1 Diabetes, and struggles with childhood apraxia of speech (CAS).
Jami is the Executive Director of Colorado Hands & Voices, the Guide By Your Side Coordinator and is the Deaf/Hard of Hearing Plus and congenital Cytomegalovirus (cCMV) Parent Guide. She is an advocate for cCMV awareness and education. Jami has presented at multiple National Conferences and local events regarding hearing loss and congenital CMV.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Andrea Stambaugh
(), Illinois Families for Hands & Voices, Andrea.Stambaugh@ilhandsandvoices.com;
Andrea Stambaugh became vested in CMV awareness and advocacy when her son, Axel, was born with congenital CMV in June of 2016. Since receiving Axel’s congenital CMV diagnosis Andrea has become an active member of the Board of Directors for IL Hands & Voices, and formerly a member on the patient education and outreach committee for the National CMV Foundation, serving on the parent planning committee for the 2018 CMV Public Health and Policy Conference, hosted a CMV Awareness fundraiser in her hometown that raised $5,300 for NCMVF, a parent liaison volunteer for Ann & Robert H Lurie Children’s Hospital of Chicago, and a parent advocate for Cochlear Americas. Andrea has presented on CMV at the Hands & Voices Leadership Conference and EDHI Conference, and has had several articles on CMV published on CMV as well as keeps a blog called, Axel’s Journey With CMV, on Facebook.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.