2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/06/2012 | 11:00 AM - 12:00 PM | A Close Look at Families and Support Received | Illinois Central | 6
A Close Look at Families and Support Received
The presenters will describe a research project, consists of interviews with ten families reflecting on support they received when their child was deaf or hard of hearing. Every parent has experiences in their family life that he or she can reflect on and share and from which others may learn. Ten families who have deaf children participated in this research project. Interviews with families covered a wide range of subjects and focused on the support they received when their baby was identified deaf. For example, they discussed the choices they made regarding cochlear implants, shared their thoughts about their family relationships, and their participation in the Deaf community. They discussed how they came to make certain decisions; they also told us about their children’s friendships, and the goals and resiliencies they have as a family.
Family support was investigated because we know of the critical impact of the family on the growth and development of all children. The literature regarding deaf children has for years documented how specific family characteristics, parental behaviors, and other environmental, contextual factors influence such areas as the child’s development, their performance in school, and their relationships with their brothers and sisters (e.g., Bat-Chava & Martin, 2002; Benedict, 2011; Bodner-Johnson, 1986; Calderon, 2000; Calderon & Greenberg, 2003). Legislation acknowledges the critical role the family plays in the lives of children with disabilities. The Individuals with Disabilities Education Act (1986) was reauthorized as the Individuals with Disabilities Education Improvement Act (IDEA) in 2004, parents became important collaborators with teachers and other professionals. Programs were required to include parents in the educational planning for their children, the needs of the families as well as the children had to be considered so the family would be better able to promote their child’s development and learning.
- 1. Participants will understand how and types of support families value the most. 2. Participants will be able to view the world from the eyes of parents. 3. Participants will be able to identify different areas that promoted family's process in raising deaf and hard of hearing children.
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Presenters/Authors
Beth Benedict
(POC,Co-Presenter,Author), Gallaudet University, beth.benedict@gallaudet.edu;
Beth S. Benedict, Ph.D., a Professor in the Department of Communication Studies and Executive Director of Undergraduate Admissions and Outreach at Gallaudet University, Washington, D.C., has focused on family involvement in schools with deaf and hard of hearing children, early childhood education, advocacy, early communication, and partnerships between deaf and hearing professionals and early intervention programs and services. Her work has been shared in numerous publications and through her work as a national and international presenter. Dr. Benedict is very involved in different organizations and boards. She was the Chair of the Joint Committee on Infant Hearing, former President of the American Society of Deaf Children, on the Council of Education of the Deaf, the Maryland Universal Newborn Hearing Screening Advisory Council and actively involved in a variety of other EHDI initiatives.
ASHA DISCLOSURE:
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Barbara Bodner-Johnson
(Co-Presenter,Author), Gallaudet University, barbara.bodner-johnson@gallaudet.edu;
Barbara Bodner-Johnson, Ph.D. is professor emerita at Gallaudet University in Washington DC She served on the faculty in the Department of Education. Her research and teaching focused on families with deaf children: on family learning environments, family dinnertime conversation, family life experiences of deaf college students, parents as adult learners, and best practices in family centered early intervention programming. Dr. Bodner-Johnson is the co-editor of The Young Deaf or Hard of Hearing Child: A Family-Centered Approach to Early Education (Paul Brookes, 2003).
ASHA DISCLOSURE:
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Nonfinancial -