2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
4/15/2014 | 10:10 AM - 10:40 AM | Connecting EHDI Data to Medical Homes through an Integrated Data System | Grand Ballroom 3 | 5
Connecting EHDI Data to Medical Homes through an Integrated Data System
Close to 100% of infants born in Rhode Island are screened for hearing loss by one month of age. Results from the newborn hearing screen, as well as follow-up recommendations, are made available on-line to primary care providers through an integrated child health information system called KIDSNET. Despite significant effort, many infants remain lost to follow-up/documentation, particularly those with risk factors who passed the newborn hearing screen. In addition to individual level EHDI data, KIDSNET contains information on the medical home for each child. The intended primary care provider is collected at birth and is updated when a vaccination is reported to KIDSNET, which also serves as the state immunization information system. Two-way communication between KIDSNET and the EHDI database (RITRACK) provided the opportunity to create reports for primary care providers that list the EHDI follow-up needs of their patients making it unnecessary to look each infant up individually. The report includes the service each child needs, such as out patient initial screen, rescreen, diagnostic auditory brainstem response (ABR) testing, or audiological monitoring at six months due to risk factors. These new summary reports will be available on-line but are also sent directly to the medical home by the state EHDI program, eliminating the need for action on their part. Reports have been sent quarterly since December 2012. A description of the data exchange, the report, and initial positive findings demonstrating an increase in audiology appointments and diagnostic results reported since the initiation of this Primary Care Provider Report will be presented.
- Describe how integrating EHDI with other public health data can connect EHDI data with medical homes
- Identify a method for engaging medical homes in EHDI follow-up using on-line reports
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Presenters/Authors
Ellen Amore
(Primary Presenter,Author), RI Dept. of Health, ellen.amore@health.ri.gov;
Ellen Amore is currently the Manager of KIDSNET, Rhode Island’s Integrated Child Health Information System that contains preventive health care information for Rhode Island children. She is PI on the CDC EHDI Cooperative Agreement. Other programs at the Rhode Island Department of Health that she has managed include Newborn Hearing Screening, Newborn Bloodspot Screening, Newborn Developmental Risk Assessment and home visiting. Her education includes a BA in Human Biology, with a concentration in child development, from Stanford University, and an MS in Maternal and Child Health from the Harvard School of Public Health.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Elsbeth Brown
(Author), RI-EHDI, brown@ripin.org;
Elsbeth is the Family Resource Specialist for the Rhode Island Hearing Assessment program. Elsbeth is the Mom of two snd has a son who has profound hearing loss.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Betty Vohr
(Author), Women & Infants Hospital, bvohr@wihri.org;
Betty Vohr, MD has been the director of Women & Infants Hospital’s Neonatal Follow-up Clinic since 1974 and medical director of the Rhode Island Early Hearing Detection and Intervention program since 1990. She has been the national coordinator of the National Institute of Child Health and Human Development Neonatal Research Network follow-up studies since 1990. Dr. Vohr’s primary clinical and research interests focus on improving the long-term outcomes of high-risk premature infants and infants with hearing loss.
Dr. Vohr played an instrumental role in the development of the RI-EHDI (formerly RIHAP), which was established in 1990. Based at Women & Infants, RIHAP became the first public health program in the United States to achieve universal newborn hearing screening for all infants born in RI. She is a recipient of the Antonia Brancia Maxon award for EHDI Excellence, has served as a member of the Joint Committee on Infant Hearing.
ASHA DISCLOSURE:
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Nonfinancial -
Tunisia Johnson
(Author), Rhode Island Hearing Assessment Program, TeJohnson@wihri.org;
Tunisia Johnson, AuD, CCC-A is the Audiologist Administrator of the Rhode Island Hearing Assessment Program (RIHAP). Dr. Johnson is an alumnus of Hampton University and Syracuse University, where she received her Doctorate in Audiology. Prior to her arrival to RIHAP, Dr. Johnson was a clinical audiologist in the Washington, DC area and a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) fellow.
ASHA DISCLOSURE:
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Nonfinancial -
Liza Then
(Author), RI DOH, liza.then@health.ri.gov;
Liza is currently the manager for the Newborn Hearing Screening program and is the EHDI coordinator for Rhode Island. Liza provides oversight for the project and coordinate with other relevant statewide efforts. She previously worked as a parent consultant, and a Community Liaison for RIDOH’s Women, Infant and Children (WIC) Program. Dr. Then is fluent in written and spoken Spanish.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Richard Lupino
(Author), DOH, Richard.Lupino@health.ri.gov;
Rich recieved an AS degrees from Community College of RI in Chemistry and an AS from New England Tech in Computer Science. He currently is the data manager for the Rhode Island EHDI data, as well as for other newborn and early childhood datasets.
ASHA DISCLOSURE:
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Nonfinancial -
Rebecca Vargas
(Author), RIHAP, Women & Infants' Hospital, RVargas@Wihri.org;
Rebecca is the follow-up coordinator at the Rhode Island Hearing Assessment Program.
ASHA DISCLOSURE:
Financial -
Nonfinancial -