2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/07/2023 | 2:15 PM - 2:45 PM | Additional Supports for Deaf Plus Families | DECC 230/231
Additional Supports for Deaf Plus Families
Perspective from a parent professional on what additional supports are available to families with infants who are deaf or hard of hearing with additional medical or developmental needs. I cannot forget the shock on some of the faces of medical, therapeutic and educational providers for my daughter in her first years. I quickly began hiding our needs so as not to overwhelm her providers. Now, as a Parent Guide with Nevada Hands & Voices, I work hard to make sure that no family ever hides the reality of their challenges. What can providers do to allow families to be authentic? What additional supports are available to early intervention and medical teams to support families in their journey? I will share some resources that have helped our family and make suggestions on how to be sensitive towards families with medically complex infants.
- Participants will be able to describe 2 unique needs of families with infants who have medical needs
- Participants will be able to identify 3 sources of support for families of infants who are Deaf Plus
- Participants will be able to locate 2 state/local providers of diagnosis specific support for families.
Presentation:
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Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Penni Echols
(), Nevada Hands & Voices, CHARGE Syndrome Foundation, penni.echols@gmail.com;
Penni Echols works with Nevada Hands & Voices, as an ASTra Advocate in the Advocacy, Support, and Training program and as a Parent Guide in the Guide By Your Side program. She is a graduate of the 2021 Hands and Voices Leadership to Leadership (L2L) Program. Penni is a Lifetime member of the National Family Association for Deaf-Blind (NFADB) and is a NFADB Ambassador. She volunteers as the Nevada Parent Liaison for the CHARGE Syndrome Foundation and serves on their Board of Directors. Her family lives in sunny Las Vegas, Nevada. She and her husband have six daughters; their youngest was born with CHARGE Syndrome in 2014.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.