EARLY HEARING DETECTION AND INTERVENTION VIRTUAL CONFERENCE
MARCH 2-5, 2021
(Virtually the same conference, without elevators, airplane tickets, or hotel room keys)
3/07/2023 | 10:10 AM - 10:40 AM | Circle of Change: Building Community to support the Medical Home | DECC 230/231
Circle of Change: Building Community to support the Medical Home
The Hands & Voices Headquarters (H&V)/Family Leadership in Language and Learning
(FL3) Center’s Diversity, Equity, and Inclusion (DEI) Plan is designed to intentionally allocate
resources to create equity of support to families from underrepresented populations. To accomplish this, H&V/FL3 will expand on their existing work supporting families with children who are deaf and hard of hearing (DHH) and promote diverse family leadership. By creating a mechanism for continuous self-reflection, training, strategic change, and review of measurable goals, H&V/FL3 can impact systems as well as provide templates and strategies for other parent support and Early Hearing Detection and Intervention (EHDI) programs to follow.
With the goal to equitably serve families including underrepresented populations, H&V/FL3 commits to: Increasing knowledge and understanding of differences, Shifting culture towards a shared community, Sharing personal stories of diverse lived experiences, Finding commonalities in our narratives, Celebrating how likeness creates interdependence, Empowering our village to elicit systemic transformation.
H&V/the FL3 Center CIRCLE of Change™ is a model and commitment to behavior as it moves forward with a Call to Action. Giving a space for people to share empowers them to be engaged in systems change. Building capacity, and strengths based community engagement is key to transformational culture leading to better quality services for deaf and hard of hearing children and their families.
Get the unique diverse perspective of individuals with lived experiences. Engage and interact to learn strategies to provide services and support that is mindful of family culture and its influence on family dynamics and the decision making process. This Multicultural group will share real life examples of ways to collaborate, and in equal partnership, work together to support the developmental, educational, and social/emotional needs of DHH children.
- Explore the HV/FL3 resource “Advancing Diversity, Equity, Inclusion & Accessibility Guidelines” and learn about the Hands & Voices initiative “Circle of Change”
- Better understand the importance of parent empowerment, parent to parent support, and parent/professional collaboration when it comes to serving DHH children from Diverse Cultures.
- Learn strategies to help understand and relate to the unique needs of parents/caregivers highlighting cultural empathy, family dynamics, and community support. Discuss ways that Parents & Professionals can work together to form an inclusive community.
Presentation:
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Handouts:
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Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Rosabel Agbayani
(), Hands & Voices, Rosabel@handsandvoices.org;
Rosabel is the Consultant for Underrepresented Populations for Hands & Voices Headquarters and volunteers her time as the President of the Board of Directors for California Hands & Voices. She is a mother of a child who is deaf/hard of hearing. She has a Bachelor of Arts in Human Development, Bachelor of Science in Communicative Disorders & Deaf Education, and a Masters in Public Health Specializing in Health Promotion. With her lived experience and her experiences working with low-income families and at-risk youth from a variety of cultural backgrounds, she understands the importance of family engagement and empowerment by building community capacity through education and advocacy. In all that she does, her spirit of collaboration is the driving force for creating a positive movement for the benefit of ALL children, especially those who are Deaf or Hard-of-Hearing. Her hope is to continue to build on the ideal of Family-Centered Care giving parents the access to comprehensive information from a wide variety of community resources. Rosabel hopes to bridge those essential connections within the community to enable children who are Deaf or Hard-of-Hearing reach their highest potential
ASHA DISCLOSURE:
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Michelle Hu
(), Mama Hu Hears, DrMichellehu@gmail.com;
Michelle has completed her Doctor of Audiology from the Northeast Ohio Audiology Consortium at the University of Akron. She graduated from Case Western Reserve University in Cleveland, Ohio with a Bachelor of Arts in sociology and chemistry. She has been part of the Cochlear Implant and Hearing Aid Management Teams at Rady Children’s Hospital since 2009. She is a fellow of the American Academy of Audiology and holds a Certificate of Clinical Competence from the American Speech-Language-Hearing Association. Having been identified with hearing loss when she was a toddler, Michelle is able to share her personal hearing loss journey with patients and peers - especially regarding use of hearing aids and now bilateral cochlear implants. She is also founder of Mama Hu Hears, a social media account where she shares both personal and professional experiences. Helping others realize their capabilities and strengths has been a long time passion of hers. She also feels that her personal struggles and overcoming of challenges lends to her abilities to help parents find their way throughout their DHH journeys. She created the online program, “My Child Has Hearing Loss, Now What?” with the goal to empower parents of DHH children to make choices best fit for their DHH family by giving them access to resources, insight and community. She is also a military spouse and mother of three.
ASHA DISCLOSURE:
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Ana Brooks
(), Hands & Voices, ana@handsandvoices.org;
Ana is a mother of two children residing in Oregon. She is brought to this work due to her oldest child not passing their newborn hearing screening. She is grateful to have experienced guidance from a parent guide early in our journey which led to positive outcomes in her child’s D/HH journey and to have been able to provide that same service to many families herself as a former parent guide.
Her passion and drive is aiding our Hispanic/Latino/x communities from her own lived experience lens. She has experienced and seen the hardships many parents face when attempting to navigate services in a different language. Ana has a unique perspective necessary to identify the many common communication gaps in the D/HH community experience. She continuously seeks ways to collaborate with other family organizations and systems of care to provide outreach and support to D/HH children and their Spanish-speaking families and Latino/x communities . Her work is to assure all information being shared to families is culturally and linguistically appropriate.
ASHA DISCLOSURE:
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Djenne-amal Morris
(), Hands & Voices HQ, djennemorris@gmail.com ;
Djenne-amal N. Morris brings passion, humor, and real-life experience to her role as a national and international
parent/professional trainer, facilitator, and motivational speaker whose view of the world is not as it is, but as it could be. As a mother of an amazing son with CHARGE Syndrome, she strives to build an atmosphere of support and empowerment for families of children with special needs and the professionals who serve them. This has led to her career working with families of children with special needs in various roles as Women’s Ministry Leader, and Family Specialist for the New England and North Carolina Deaf-Blind Projects, and
Parent Educator. Professionally, Djenne serves as Family Faculty/Multicultural Advisor for the NC-LEND program at UNC-Chapel Hill. She is a co-author of The Art of Collaboration: Lessons from Families of Children with Disabilities. Djenne holds a BA in Psychology from Clark University and holds a Certificate in Diversity & Inclusion from Cornell University. Djenne and her husband Michael of 30 years have 3 children. Malik, 26, is a graduate of the Eastern North Carolina School for the Deaf. He is independent and living his best life in a group home for Deaf young men. Imani, 27, is a future MPH focusing on Maternal and Child Health. Her youngest Zakiya, 21, is
a graduate of UNC-Chapel Hill and a future Audiologist.
ASHA DISCLOSURE:
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Rana Ottallah
(), Louisiana Hands and Voices, Rana.ottallah@la.gov;
A parent and a dedicated Special Education Advocate interacts effectively with individuals and parents of children with disabilities, schools, districts and the State Department of Education to ensure Free and Appropriate Education for students with disabilities, and appropriate home and community services. Advocates passionately for Deaf Education reform, and Language access for diverse population in the state of Louisiana.
-Special Education Advisory Panel Member (SEAP) – LDOE (2013-2017)
-Commissioner for the Deaf (2016- present)
- Deaf Education Alliance Chair (2016-2017)
-MFP Task Force member 2014
-Louisiana Hands and Voices Advisory Panel Member (2014-present)
-Partners in Policy Making 2013 Graduate
- Driving force behind Act 250- Deaf Child Bill of Rights Amendment
- A member of Louisiana ESSA advocacy group that advises and monitors state implementation plan.
- Faculty members of “Collaborate for students with unique communication needs grant”, as a parent advocate presenting on federal and state laws and regulations (2016-present).
- Executive Board member of MUHSEN (Muslims understanding and supporting Special Education Needs)
ASHA DISCLOSURE:
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Mariana Barquet
(), Indiana Hands & Voices, mbarquet@isdh.in.gov;
Mariana is the mother of two children, her youngest was born profoundly deaf. Her biggest passion is to ensure that every Hispanic child with hearing loss in Indiana has access to and receives qualified services to meet their needs and achieve successful outcomes.
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