EARLY HEARING DETECTION AND INTERVENTION VIRTUAL CONFERENCE
MARCH 2-5, 2021
(Virtually the same conference, without elevators, airplane tickets, or hotel room keys)
3/14/2022 | 9:30 AM - 9:55 AM | Deaf with Disabilities - Parent Professional Perspective | Room 6
Deaf with Disabilities - Parent Professional Perspective
An estimated 40% of all children who are deaf/hard of hearing have a secondary disabling condition listed on their IFSP, IEP or 504 documents, some more than that. Because most interventionists have not been trained to work with these children, they can present a special challenge. This presentation provides information regarding what struggles we see with these students today and down the road once they are in the classroom setting. The presenters will share some tips for early interventionists that can be used to enhance therapies for babies and toddlers as well as parent support. The presenters are both parents, one is a parent of a 19-year-old who has gone through early intervention and mainstream public school with comorbid ADHD and Deafness. The other presenter has a kindergarten child who has multiple medical and developmental needs. The presenters will go into depth about the needs of their children and how you can help. This session will include specific examples that the presenter’s families have faced and solutions that proved successful. If you have clients who have children with multiple needs, this is a great way to hear real life tips and tricks that worked for these families.
- Participants will get a bird’s eye view of life with a child who is deaf and also has multiple disabilities
- Attendees will learn what types of interventions work best for these mulit-challenged children
- Professionals will leave with background knowledge on deafness with other disabilities, how many are we talking about, what types could they see, etc.
Presentation:
3353554_14951AndreaMarwah.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Andrea Marwah
(), IL Hands & Voices Guide By Your Side, executivedirector@ilhandsandvoices.com;
Andrea Marwah received her BA degree in Psychology from North Central College in Naperville, Illinois. Since her daughter was diagnosed with hearing loss in 2002, she has taken a special interest in educating parents and professionals on matters concerning ADA (Americans With Disabilities Act), IDEA (Individuals with Disabilities Education Act) - special education rights, and advocacy for students who are deaf or hard of hearing. Andrea presents both locally and nationally on matters pertaining to advocacy and IDEA; deafness/hearing loss when combined with other disabilities; the impact of deafness/hearing loss; socialization and many other topics surrounding parenting and working with children who are deaf and hard of hearing. She works for the Illinois Department of Human Services, Illinois School for the Deaf as an outreach trainer and consultant for families and professionals who work with children who are deaf, hard of hearing, blind, visually impaired or deaf-blind. She is also a parent advocate supporting families in Illinois at their child’s IEP meeting or behind the scenes preparing them to attend the meeting and advocate themselves. Andrea is the Executive Director at Illinois Hands & Voices and has been a leader with them since 2010, began as the IDEA liaison for the Guide By Your Side Program in 2009 where she provides unbiased information and one-on-one advocacy and IDEA support to families who have children who are deaf/hard of hearing and is a national trainer for the Hands & Voices ASTra Training Program and a member of the Hands & Voices speakers bureau. She works closely with Designated Service Coordinators providing group training and individual consulting. These are trained individuals who work directly with infants and toddlers in Illinois birth to three who have a diagnosis involving vision, hearing or a combination of both in her state early intervention program. Andrea works as a liaison with the Early Intervention Training Program on issues surrounding deafness and hearing loss. She sits on numerous committees both locally and nationally. Andrea also served for six years on the Advisory Commission on Disabilities in her home town of Naperville, where she lives with her husband Ajay and 3 children Samantha, Julia and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Andrea Stambaugh
(InPerson), Illinois Families for Hands & Voices, Andrea.Stambaugh@ilhandsandvoices.com;
Andrea Stambaugh became vested in CMV awareness and advocacy when her son, Axel, was born with congenital CMV in June of 2016. Since receiving Axel’s congenital CMV diagnosis Andrea has become an active member of the Board of Directors for IL Hands & Voices, and formerly a member on the patient education and outreach committee for the National CMV Foundation, serving on the parent planning committee for the 2018 CMV Public Health and Policy Conference, hosted a CMV Awareness fundraiser in her hometown that raised $5,300 for NCMVF, a parent liaison volunteer for Ann & Robert H Lurie Children’s Hospital of Chicago, and a parent advocate for Cochlear Americas. Andrea has presented on CMV at the Hands & Voices Leadership Conference and EDHI Conference, and has had several articles on CMV published on CMV as well as keeps a blog called, Axel’s Journey With CMV, on Facebook.
ASHA DISCLOSURE:
Financial -
Nonfinancial -