EARLY HEARING DETECTION AND INTERVENTION VIRTUAL CONFERENCE
MARCH 2-5, 2021
(Virtually the same conference, without elevators, airplane tickets, or hotel room keys)
4/15/2014 | 3:00 PM - 3:30 PM | Follow-Up and Support for Families....Creating a Family Centered Loss to Follow-Up System. | City Terrace 7 | 1
Follow-Up and Support for Families....Creating a Family Centered Loss to Follow-Up System.
The State of Maine EHDI program, has created a parent partnership to support loss to follow up in our state. The Maine Newborn Hearing Program provide a two-tiered system of support to families and follow up with medical and audiological providers, by providing a loss to follow up coordinator that oversees the follow up process and focuses on follow up with the child's medical home and audiology providers, and a parent consultant that focuses on supporting the parents to get to next step in their process of following up after newborn hearing screening. Both of these positions are filled by parents, an aspect we feel is critical to our success. In an effort to encourage families to participate in Part C services and receive family support in early intervention these providers work collaboratively with Maine's Part C agency and Maine's Early Childhood and Family Services program to ensure families receive timely and appropriate early intervention in a family centered way. The presenters will share aspects of their program that they feel are essential to reducing loss to follow up and how partnerships and parental involvement have been key to its success.
- Describe how family centered statewide follow up after newborn hearing screening can be done by involving parents in a coordinated systematic way.
- Identify critical areas of need in a family centered follow up system.
- Explain how to promote family independence and follow up with a family centered loss to follow up program.
Presentation:
This presentation has not yet been uploaded.
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Anne Banger
(Primary Presenter), Maine Newborn Hearing Program, anne.banger@maine.gov;
Anne Banger is the state EHDI coordinator for the Maine Newborn Hearing Program. She obtained her Bachelor of Science degree in Civil Engineering and her Bachelor of Arts degree in Business Administration from Rutgers University. She served on the Maine Commission for the Deaf, Hard of Hearing and Late Deafened. She is a member of the Executive Board of the Cued Speech Association of Maine and Cue Camp New England. She is the proud mother of a deaf son who is currently attending Roger Williams University studying Architecture.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Darlene Freeman
(Co-Presenter), Maine Hands & Voices, darlsfree13@gmail.com;
Darlene Freeman is on the board and the treasurer of the Maine Hands & Voices chapter and a Parent Guide with Maine Hands & Voices. She is also the Quality Improvement Specialist for Maine's HRSA Grant. She is the parent of her 28-year-old daughter, Deaven, who is deaf. Darlene enjoys working with families to help them understand the newborn hearing screening process into early intervention and beyond to encourage them to become strong advocates for their children who are deaf or hard of hearing.
ASHA DISCLOSURE:
Financial -
• Receives Grants for Independent contractor from HRSA.
Nonfinancial -
No relevant nonfinancial relationship exist.
Karen Hopkins
(Co-Presenter), The Maine Educational Center for the Deaf and Hard of Hearing, karen.hopkins@mecdhh.org;
Karen Hopkins is the Executive Director of The Maine Educational Center for the Deaf and Hard of Hearing and the principle investigator of Maine's HRSA grant. Karen oversees early intervention and statewide educational programming for children who are Deaf or hard of hearing birth to age 22. throughout the state of Maine. She serves on the Hands & Voices HQ Board of Directors, the Maine Newborn Hearing Screening Advisory Board, The Percival Baxter Foundation for Deaf and Hard of Hearing Children Board, was a founding member of Maine’s Hands & Voices chapter and has served on the National EHDI meeting planning committee. Karen has presented at several national conferences and internally at the FCEI conference in Austria and the FCEI conference in China. Karen is a Deaf adult who has three children, one of whom is hard of hearing.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment,Management position from Maine Educational Center for the Deaf and Hard of Hearing.
Nonfinancial -
No relevant nonfinancial relationship exist.