2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
3/20/2018 | 9:40 AM - 10:40 AM | The Support Matrix: Identifying and Implementing Opportunities for Families to be Connected with Individuals who are D/HH | Capitol 1
The Support Matrix: Identifying and Implementing Opportunities for Families to be Connected with Individuals who are D/HH
This session will share information about the positive aspects of connecting families with deaf and hard of hearing adults and community members. We will also describe several ways systems can provide and facilitate these connections. The approaches shared during this session can be used in any combination, and they can be used at different points in a family’s experience. Families should be able to choose the combination(s) that suit their situation. All families, regardless of hearing level or communication/language of the child, should have the opportunity to interact and learn from D/HH Adults; this may include formal to informal interactions, from high level interactivity to low, etc.
A new tool will be introduced that has been developed so that families and EHDI systems can review, discuss, and decide about next steps in ensuring that families have the opportunity to access the D/HH perspective and life experience. These opportunities are not a one size fits all list nor are the resources/supports mutually exclusive. This tool includes scoring rubrics that may be used by any family and/or EHDI teams/stakeholders in the country to help facilitate and document important considerations around access to D/HH adults with a simple matrix for opportunities along a continuum, including: State-based Deaf Mentor Programs (including SKI-HI Deaf Mentor Curriculum); D /HH Role Model Programs; Including D/HH adults at Family Events; Virtual Interactions; Recorded Videos.
This new document, A Continuum of Support for Connecting Families with Individuals who are D/HH has been produced by the CDC hosted Parent-to-Parent committee that has previously created other support documents for families (i.e. “Questions to Ask Your Audiologist, The What Else Checklist for Audiologists, the Parent’s Guide to the JCIH Supplement”). This committee is comprised of parents, professionals, D/HH Adults and ‘systems’ thinkers from many different states.
- Build self-awareness and motivation that leads to a greater ability to implement opportunities for connecting families to D/HH Adults.
- Utilize the tool that will be available to create discussions regarding supports needed in an individual state/territory.
- Empower Families to decide which types of support from D/HH adults is available and/or desired in their own lives.
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Presenters/Authors
Janet DesGeorges
(), Hands & Voices, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is Executive Director of Hands & Voices Headquarters. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill.
As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Terri Patterson
(), Hands & Voices, terri@handsandvoices.org;
Terri Patterson is the Director of Chapter Support for Hands & Voices, Coordinator of the H&V Leadership-to-Leadership (L2L) Program, and a member of the core management team for Hands & Voices Family Leadership in Language and Learning (FL3) Center. Her passion stems from her family, specifically her son who was born profoundly deaf in 1999. Through her personal experiences raising, supporting and advocating for her son, as well as navigating the systems that support children who are D/HH, she provides perspective, herself, as a hard of hearing adult. Her leadership skills continue to grow as she trains and provides technical assistance to over 50 Hands & Voices Chapters and efforts across North America through one-on-one training, leadership development, state and national conference presentations and national organizational engagement with NAD, NCDB, HRSA.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Michele Berke
(), California School for the Deaf, mberke@csdf-cde.ca.gov;
Michele Berke has worked for over 30 years in programs within the Deaf community. Her experience includes management of a rest home for deaf and deaf-blind senior citizens, directing Gallaudet University's western regional office, coordinating a US Department of Education funded project to develop an ASL Assessment tool, and teaching college-level Linguistics of ASL courses.
Berke currently works at the California School for the Deaf in Fremont as Principal in the Early Childhood Education Department. Her doctoral studies in Speech, Language, and Hearing Sciences from the University of Colorado in Boulder focused on exploring the shared reading practices of Deaf and hearing mothers and their pre-school children.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Danelle Gournaris
(), Lifetrack, Danelleg@lifetrack-mn.org;
Danelle has been at Lifetrack since 2012 as Deaf Family Mentor Program Supervisor. The Deaf Mentor Family Program at Lifetrack, based in St. Paul, Minnesota is a statewide program that provides Deaf Mentor and Language Role Model to hearing families with deaf and hard of hearing children. Danelle currently supervises 25 Deaf Mentors with approximately 145 families served since 2012. Prior to Lifetrack, she was a family counselor at a school district for one year and a deaf mentor for seven years. In 2000, Danelle earned her Masters of Arts in School Counseling from and her Masters of Science in Administration from Gallaudet University. She is also a Certified Deaf Mentor Trainer. Danelle currently serves as a board member for the Metro Deaf School, a deaf charter school in St. Paul, Minnesota.
ASHA DISCLOSURE:
Financial -
Nonfinancial -