2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
3/20/2018 | 3:00 PM - 3:30 PM | Peel the Label | Agate A-C
Peel the Label
Hunter syndrome is a very rare, inherited genetic disorder caused by a missing or malfunctioning enzyme. This syndrome can cause a variety of complications in almost every area of a child's development including the following: respiratory, cardiac, skeletal and connective tissues, and the brain and nervous system (Mayo Foundation for Medical Education and Research; mayoclinic.org). Children with Hunter syndrome also often have hearing loss.
A label, however, is just a label! If we allow ourselves to be driven by labels as opposed to abilities, there are many children who will not reach their full potential.
Through a case study of one child and his amazing family’s journey with Hunter Syndrome, the presenters will share their own experiences working against labels. This presentation will further discuss facts about Hunter Syndrome and the implications this condition can have on intervention expectations. Presenters will share their own perspective as well as the perspective of the parents as they moved through the Early Intervention system.
This presentation will challenge professionals to examine their own potential biases and misconceptions about the labels we place on children.
- The participant will list the pros & cons of labels(diagnosis)
- The participant will discuss the benefits of a comprehensive team approach
- The participant will define Hunter Syndrome and explain treatment models.
Presentation:
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Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Sherri Fickenscher
(), Clarke Schools for Hearing and Speech, sfickenscher@clarkeschools.org;
Sherri Fickenscher, LSLS Cert. AVEd, is an Education Support Specialist at Clarke Schools for Hearing and Speech/Pennsylvania. She is responsible for staff and parent coaching and training. She mentors professionals seeking their Listening and Spoken Language certification and has presented at state, national, and international levels in an effort to improve listening and spoken language outcomes for children and families. Ms. Fickenscher is a contributing author to 101 Frequently Asked Questions About Auditory-Verbal Practice as well as Preparing to Teach, Committing to Learn and From Listening to Language. She is co-author of Auditory Verbal Strategies to Build Listening and Spoken Language Skills. Sherri is a member of the AGBell Association Board.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Ashley Mahlstedt
(), Clarke Schools for Hearing & Speech, amahlstedt@clarkeschools.org;
Ashley Mahlstedt, M.E.D, is a member of the Early Intervention Team at Clarke Schools for Hearing and Speech Pennsylvania. She works in the home with families and their infants/toddlers with hearing loss, as well as teaching in a center-based Toddler Group program at the Clarke School. Ashley received her undergraduate degree in communication science disorders at The University of Pittsburgh and completed her master's degree in education of the deaf at Smith College.
ASHA DISCLOSURE:
Financial -
Nonfinancial -