2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
3/06/2012 | 9:40 AM - 10:40 AM | Family Advisory Boards: Making them Meaningful | Grand Ballroom A | 6
Family Advisory Boards: Making them Meaningful
Family Involvement comes in many forms. Contributions from individual parent leaders, Family organizations, and Family Advisory Boards are a few examples of how family input is received in different aspects of the EHDI system. This session will focus primarily on the function and dynamic process of ‘Advisory Boards’, and share elements from a few models of family involvement including:
1. The NCHAM Family Advisory Board
2. The NICHQ Parent Faculty Chair Position
3. The Deaf/Hard of Hearing Alliance (DHHA)
4. The National Center for Cultural Competency Parent Consultant Position
While active Family Involvement is a principle that is often put forth as a necessity, actual meaningful participation requires conditions in which parent perspective can be introduced and acted upon. This session will demonstrate dynamic, often ‘outside the box’ participation by individuals, groups, and organizations with examples of organizational change that has been implemented as a result. Basic strategies will be shared, including how to engage families when certain challenges exist, including: Availability of time constraints, ensuring diverse perspectives, pros and cons of funded vs. unfunded positions etc.
- 1. Identify the major functions of Family Advisory Boards in developing collaborative partnerships 2. Learn about different elements family members can contribute to Grants, National Centers, Committees and other venues for Family involvement 3. Determine ways to strengthen partnerships among EHDI and Family organizations
Presentation:
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Presenters/Authors
Stephanie Olson
(), Hands & Voices, Headquarters, stephanie@handsandvoices.org;
Stephanie Olson currently works as the Co-Director of Deaf and Hard of Hearing Infusion with Hands & Voices Headquarters and is the Family Consultant at Children’s Hospital Colorado. She previously worked for the Colorado Home Intervention Program as a family facilitator. During 2009, she was part of a team from Children’s Hospital Colorado that traveled to London, South Africa, Brazil and New Zealand and presented on best practices in supporting families. Stephanie has presented at the International Family-Centered Early Intervention (FCEI) Austria, in 2012, 2014,2016, and 2018. She participated in the U.S. and Russian cultural exchange in 2015 and 2016 with Hands & Voices to increase the understanding and impact of Deaf and hard-of-hearing individuals in the parenting journey and professionals who work with those families.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Trish Thomas
(Co-Presenter), Nt'l Center for Family-Professional Partnerships, tthomas@familyvoices.org;
Trish has been a leader in the field of family-professional partnerships, serving as the coordinator for the New Mexico Family Voices chapter and later as the partnerships coordinator at National Family Voices. Trish has a son with hearing loss, and advocating for hearing-related needs is a particular passion.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Cheri Dowling
(Co-Presenter), American Society for Deaf Children, cad800@aol.com;
Cheri Dowling is the Executive Director of The American Society for Deaf Children (ASDC). She is the parent of a child who is deaf, and lives in Maryland.
ASHA DISCLOSURE:
Financial -
Nonfinancial -