NCHAM www.infanthearing.org  
2004 State EHDI Survey > Family Support
 

FAMILY SUPPORT RESULTS


23. Is there a system in your state to assist parents of babies identified with hearing loss in making contact with:

Table 23.
Yes No
a. Other parents of babies
identified with hearing loss?
44 7
b. Individuals who are
deaf or hard of hearing?
38 3
 

24. Early Intervention programs for children who are deaf or hard of hearing often emphasize different methods of communication. How would you rate the statewide quality and availability to parents of programs that emphasize the following communication options?

No ratings provided: 4 states "unknown", 1 state "no known programs"

QUALITY AVAILABILITY
Table 24a. Quality
Poor to Excellent
  1 2 3 4 5
Total Communication  
Number of responses: 1 5 10 18 10
Percentage: 2.3 11.4 22.7 40.9 22.7
Average 3.70
 No response (1 state); Unknown (1 state)
 
American Sign Language  
Number of responses: 1 5 10 20 10
Percentage 2.2 10.9 21.7 43.5 21.7
Average 3.72
 
Cued Speech  
Number of responses: 6 11 8 11 2
Percentage 15.8 28.9 21.1 28.9 5.3
Average 2.79
No response (2 states); Unavailable (3 states)
 
Auditory/Oral  
Number of responses: 0 2 11 23 8
Percentage 0 4.5 25.0 52.3 18.2
Average 3.84
No response (2 states)
 
Table 24b. Availability
Poor to Excellent
  1 2 3 4 5
Total Communication  
Number of responses: 1 5 10 18 10
Percentage: 2.3 11.4 22.7 40.9 22.7
Average: 3.70
 
 
American Sign Language  
Number of responses: 4 8 11 15 8
Percentage 8.7 17.4 23.9 32.6 17.4
Average 3.00
 
Cued Speech  
Number of responses: 16 11 7 6 1
Percentage 39.2 26.8 17.1 14.6 2.4
Average 2.15
N/A for quality rating only (1 state)
 
 
Auditory/Oral  
Number of responses: 1 12 11 16 4
Percentage 2.3 27.3 25.0 36.4 9.1
Average 3.23
 

25. Please list below the different languages, if any, in which your state has developed materials about your EHDI program:

Table 25.
Languages currently available Number of states
English only 5
Spanish 42
Russian 5
Vietnamese 5
Chinese 3
Creole 3
Korean 3
Bosnian 2
French 2
Hmong 2
Laotian 2
Urdu 2
Arabic 1
Bengali 1
Cambodian 1
Farsi 1
Ilokano 1
Japanese 1
Marshallese 1
Portuguese 1
Samoan 1
Somali 1
Tagalog 1
Tongan 1
 
Comments by Respondents:

2 states with translation of materials "in process":

  • State 1 (Arabic, Bosnian, Cambodian, Chinese, French, German, Korean, Japanese, Laotian, Russian, Somalia, Spanish, Ukrainian, & Vietnamese)
  • State 2 (Spanish)

Table 25a. Languages by State
Language State
Arabic MI
Bengali NY
Bosnian MO & VT
Cambodian CA
Chinese CA, NY, & VA
Creole FL, MA, & NJ
Farsi VA
French NY & VT
Hmong CA & MN
Ilokano HI
Japanese HI
Korean GA, MD, & VA
Laotian CA & VT
Marshallese HI
Portuguese MA
Russian CA, MA, MD, NY, & WA
Samoan HI
Somali MN
Spanish AL, AR, AZ, CA, CO, CT, DC, DE, FL, GA, HI, IA, ID, IL, IN, KS, MA, MD, MI, MN, MO, MS, NC, NE, NJ, NM, NV, NY, OK, OR, PA, RI, SC, TN, TX, UT, VA, VT, WA, WI, WV, & WY
Tagalog HI
Tongan HI
Urdu NY & VA
Vietnamese CA, GA, HI, MO, & VA
 

26. Does your state have adequate materials to:

Table 26.
  Poor to Excellent
1 2 3 4 5
Educate parents about newborn hearing screening  
Number of responses: 0 3 8 17 23
Percentage: 0 5.9 15.7 33.3 45.1
Average 4.17
 
Educate physicians about EHDI programs  
Number of responses: 0 9 15 17 10
Percentage: 0 17.6 29.4 33.3 19.6
Average: 3.55
 
Educate parents about communication options  
Number of responses 2 12 8 17 11
Percentage: 4.0 24.0 16.0 34.0 22.0
Average 3.46

27. Does your state EHDI program have its own website

Table 27.
  Number
of States
Yes 29
No 21
No response (1 state)
 

Table 27a.
State Web Address
AK http://www.hss.state.ak.us/dhcs/newborn
CA http://www.dhs.ca.gov/nhsp
CO http://www.cdphe.state.co.us/cdphehom.asp
CT http://www.dph.state.ct.us/bch/family%20health/newborn/unhsp.htm
DE http://www.state.de.us/dhss/dph/chca/dphnhsp1.html
FL http://www.cms-kids.com
GA http://health.state.ga.us/programs/unhs/
IA http://www.idph.state.ia.us/iaehdi/default.htm
ID http://www.state.id.us/cdhh/ehdi/
IN In process, available soon
KS http://www.soundbeginnings.org
KY http://www.chs.ky.gov/commissionkids/unhs.htm
LA Currently being updated
MA http://www.mass.gov/dph/fch/unhsp/index.htm
MD http://www.fha.state.md.us/genetics
MI http://www.michigan.gov/ehdi
MN http://www.health.state.mn.us/divs/fh/mch/unhs
NC http://www.ncnewbornhearing.org
ND http://www.ndcpd.org/1stsounds
NJ http://www.state.nj.us/health/fhs/scnbhrng.htm
NY Refer to the Department of Health Early Intervention Program Web site at http://www.health.state.ny.us, click on Information for Consumers, choose Early Intervention from the list of topics (http://www.health.state.ny.us/nysdoh/eip/memo03-3.htm)
OH http://www.odh.state.oh.us/ODHPrograms/HEAR_INF/hearinf1.htm
OK Not as of 4/23/2004, being developed
OR http://www.dhs.state.or.us/publichealth/pch/hearing/index.cfm
RI http://www.health.state.ri.us/family/hearing/universal.htm
http://www.health.state.ri.us/family/hearing/newborn.htm
SC http://www.scdhec.net
https://webserver03.dhec.sc.gov/firstsound/firstsound.dll
TN http://www.state.tn.us/health currently under development
TX http://www.tdh.state.tx.us/audio/newbornhear.htm
VA http://www.vahealth.org/hearing
VT http://www.vermont.gov (linked through Health Department)
WA Going up this month, address not available yet