19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 3:45 PM - 4:15 PM | Successful Communication Methods for Complex Kids | Empire A
Successful Communication Methods for Complex Kids
Every child deserves to be understood and be able to communicate their wants and needs to those around them. Sometimes as parents, and service providers, we need to be able to think outside the box and get creative, so that these children have that basic right of communication and expression. Come find out how congenital Cytomegalovirus (cCMV) can reek havoc on communication styles throughout the child's life. Listen to four very unique stories, presented by two cCMV moms. Find out how each family has tailored different communication methods and utilized different tools to acquire communication within their family unit.
- Understanding a brief overview of cCMV
- Gaining knowledge about different tools to utilize for communication
- Applying these communication tools to fit different needs with each individual child/family.
Presentation:
21060_12502JamiFries.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Jami Fries
(), Colorado Hands & Voices, Jami@co-hv.org;
Jami Fries lives in Mead, CO with her husband, Eric, and two boys, Liam and Nathan. Nathan is profoundly deaf due to congenital Cytomegalovirus (cCMV), has Type 1 Diabetes, and struggles with childhood apraxia of speech (CAS).
Jami is the Executive Director of Colorado Hands & Voices, the Guide By Your Side Coordinator and is the Deaf/Hard of Hearing Plus and congenital Cytomegalovirus (cCMV) Parent Guide. She is an advocate for cCMV awareness and education. Jami has presented at multiple National Conferences and local events regarding hearing loss and congenital CMV.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Andrea Stambaugh
(), Illinois Families for Hands & Voices, Andrea.Stambaugh@ilhandsandvoices.com;
Andrea Stambaugh became vested in CMV awareness and advocacy when her son, Axel, was born with congenital CMV in June of 2016. Since receiving Axel’s congenital CMV diagnosis Andrea has become an active member of the Board of Directors for IL Hands & Voices, and formerly a member on the patient education and outreach committee for the National CMV Foundation, serving on the parent planning committee for the 2018 CMV Public Health and Policy Conference, hosted a CMV Awareness fundraiser in her hometown that raised $5,300 for NCMVF, a parent liaison volunteer for Ann & Robert H Lurie Children’s Hospital of Chicago, and a parent advocate for Cochlear Americas. Andrea has presented on CMV at the Hands & Voices Leadership Conference and EDHI Conference, and has had several articles on CMV published on CMV as well as keeps a blog called, Axel’s Journey With CMV, on Facebook.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.