19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 3:45 PM - 4:45 PM | The Perks of Parent to Parent Support and Communication Choices: Real life sharing – before and after Guide By Your Side Parent Panel | Atlanta
The Perks of Parent to Parent Support and Communication Choices: Real life sharing – before and after Guide By Your Side Parent Panel
Parents who find out their child is deaf or hard of hearing are faced with numerous decisions they must make. One of the most important yet daunting is that of communication. Depending on who a parent speaks with, will depend on what advise they receive. This panel will show the importance of early referral to a parent-based support organization such as Guide By Your Side. Panelists will talk about what their initial experience about making a communication choice was before they were paired with a Parent Guide through the IL Guide By Your Side Program and what they felt after they began working with a Parent Guide. The major difference was that CHOICE became CHOICES and they were empowered to make the choice that was right for them at that time and the ever-important knowledge that it’s okay to change if that initial choice isn’t working.
- Attendees will hear from parents who benefited from parent to parent support from the start
- Attendees will learn how parents receive unbiased communication information
- Attendees gain insight on the parent perspective and what it's like to raise children who are DHH
Presentation:
21060_12595AndreaMarwah.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Carrie Balian
(), IL Hands & Voices Guide By Your Side, IL School for the Deaf, cbalian@sbcglobal.net;
Carrie Balian is the mother of five children. Her oldest, Jack, was born deaf. Carrie and her family reside in Island Lake, IL. She is the Coordinator of the Guide By Your Side program in Illinois. Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie has served or is currently serving as a board member for the Illinois Genetic & Metabolic Diseases Advisory Council, , an editor for the JEHDI publication and participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She also participated as a parent professional on the NICHQ national and statewide learning collaborative teams. Carrie has been recognized and awarded both nationally and locally for her support, commitment and leadership in the field. Her educational background includes a Bachelor’s degree in Marketing and Management.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Andrea Marwah
(), IL Hands & Voices Guide By Your Side, executivedirector@ilhandsandvoices.com;
Andrea Marwah received her BA degree in Psychology from North Central College in Naperville, Illinois. Since her daughter was diagnosed with hearing loss in 2002, she has taken a special interest in educating parents and professionals on matters concerning ADA (Americans With Disabilities Act), IDEA (Individuals with Disabilities Education Act) - special education rights, and advocacy for students who are deaf or hard of hearing. Andrea presents both locally and nationally on matters pertaining to advocacy and IDEA; deafness/hearing loss when combined with other disabilities; the impact of deafness/hearing loss; socialization and many other topics surrounding parenting and working with children who are deaf and hard of hearing. She works for the Illinois Department of Human Services, Illinois School for the Deaf as an outreach trainer and consultant for families and professionals who work with children who are deaf, hard of hearing, blind, visually impaired or deaf-blind. She is also a parent advocate supporting families in Illinois at their child’s IEP meeting or behind the scenes preparing them to attend the meeting and advocate themselves. Andrea is the Executive Director at Illinois Hands & Voices and has been a leader with them since 2010, began as the IDEA liaison for the Guide By Your Side Program in 2009 where she provides unbiased information and one-on-one advocacy and IDEA support to families who have children who are deaf/hard of hearing and is a national trainer for the Hands & Voices ASTra Training Program and a member of the Hands & Voices speakers bureau. She works closely with Designated Service Coordinators providing group training and individual consulting. These are trained individuals who work directly with infants and toddlers in Illinois birth to three who have a diagnosis involving vision, hearing or a combination of both in her state early intervention program. Andrea works as a liaison with the Early Intervention Training Program on issues surrounding deafness and hearing loss. She sits on numerous committees both locally and nationally. Andrea also served for six years on the Advisory Commission on Disabilities in her home town of Naperville, where she lives with her husband Ajay and 3 children Samantha, Julia and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Lydia Hernandez
(), Guide By Your Side, hernandezlydiaj@gmail.com;
Parent Guide – Brown & Statewide
Lydia is the mother of three children one who has hearing loss. She assists
families as one of our Spanish speaking Parent Guides. Lydia and her family
live in Cook County.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Mariana Barquet
(), Indiana Hands & Voices, mbarquet@isdh.in.gov;
Mariana is the mother of two children, her youngest was born profoundly deaf. Her biggest passion is to ensure that every Hispanic child with hearing loss in Indiana has access to and receives qualified services to meet their needs and achieve successful outcomes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jessica Quiros
(), aldkjflajdlkj, abc@yahoo.com;
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ASHA DISCLOSURE:
Financial -
Nonfinancial -