2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
When Do We Lose Whom? Insights into Lost-to-Follow Up Hearing Screening Population Differences
In the United States, between one and three children out of every 1,000 are born with a detectable level of hearing loss in one or both ears. Children affected by hearing loss may struggle to reach developmental milestones, particularly with speech, language, and social skills. Thus, unidentified hearing loss is considered a developmental emergency. For this reason, the Joint Committee on Infant Hearing (JCIH) established the 1-3-6 benchmarks of screening by one month, diagnostics by three months, and intervention by six months. However, despite ongoing efforts, children still do not always meet these benchmarks.
This study seeks to understand the population differences between those who did not meet the first two benchmarks by linking EHDI data with Missouri vital records data. The data supports the hypothesis that there are significant differences between these populations regarding where they are born, the services they utilize, and their social support structures. As such, a more tailored approach is necessary in attempting to reach those who are lost to follow-up at different stages. Insights from this research will focus messaging to reach those at higher risk of becoming lost to follow-up, such as the need to target efforts to improve hearing screening within the home birth population. This will improve outcomes for the deaf and hard of hearing population in Missouri. It will also guide the Missouri EHDI Program as they work to develop new partnerships, seeking to meet families where they are and help them obtain the care they need.
- Breakdown of differences between lost-to-follow up populations at different stages
- Highlight key differences between populations
- Utilize these population differences to focus outreach strategies
Poster:
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Presenter: Daniel Quay
Daniel has worked as an employee for the Missouri Department of Health and Senior Services since 2016. He presently serves in the Office of Epidemiology as the Senior Research Analyst assigned to the Pregnancy Associated Mortality Review program and the Early Hearing Detection and Intervention program. He holds an M.A. from the University of Oklahoma in Sociology.
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Catherine Harbison is the Newborn Hearing Screening Program Manager in the Missouri Department of Health and Senior Services Bureau of Genetics and Healthy Childhood. She has served as the Missouri EHDI Coordinator since 2002.
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