2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
3/06/2023 | 3:15 PM - 3:45 PM | Understanding parental compliance with New Jersey’s Early Hearing Detection and Intervention (EHDI) program | DECC 212
Understanding parental compliance with New Jersey’s Early Hearing Detection and Intervention (EHDI) program
Timely follow-up from EHDI programs has been a persistent problem across New Jersey. Zeitlin et al. (2021) indicated that mothers of low socioeconomic status and those with postpartum depression might have difficulty following up with recommended hearing tests. Researchers found a need for additional medical home involvement regarding keeping parents updated with their child's follow-up appointments. They suggest an example of this involvement, a follow-up system established in the baby's pediatric chart. This would be especially useful for infants with high-risk indicators for hearing loss. Cunningham et al. (2018) found that methods used to improve follow-up care focused on "improving parental education and communication with medical professions." They concluded that "parents, medical home providers, and state health departments play critical roles in ensuring that children who fail the newborn admission hearing screening are not lost to follow-up and receive appropriate and timely intervention." In addition, Zeitlin suggests that WIC involvement may be a barrier to timely diagnosis but a facilitator for timely initial screening (Zeitlin et al., 2021).
This study aimed to use a ground theory approach to understand the follow-up process and develop a theory explaining the parent's experience. Social media was used to recruit participants. Parents were given a brief survey to collect demographic information to determine eligibility. A researcher conducted thirty-minute interviews with thirty parents. The parents answered seven questions about their experience with hearing screening and audiologic evaluation follow-up for their child. At least three researchers reviewed each interview (audio and video). Researchers identified facilitators and barriers to timely follow-up. In addition, the researchers conducted the process of memoing and selecting categories for the follow-up process. The discussion will explain these findings from participating parents and discuss a possible theoretical explanation for follow-up.
- The participants will be able to identify factors that influence parent compliance with follow-up recommendations.
- The participants will be able to list the process of ground theory research
- The participants will be able to identify at least two categories to be the focus of follow-up of newborn hearing screening
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Presenters/Authors
Wendy Zeitlin
(), Montclair State University, zeitlinw@montclair.edu;
Dr. Wendy Zeitlin teaches classes in research methods, diversity and oppression, contemporary social issues in child advocacy, and child abuse and neglect. She served as an evaluator on the New York State Social Work Education Consortium from 2007 to 2015 and the Child Welfare Workforce Initiative, funded through the U.S. Children’s Bureau from 2008 to 2015. She continues her child welfare workforce studies in conjunction with the National Child Welfare Workforce Institute (NCWWI). Dr. Zeitlin has authored and co-authored several research articles regarding workforce issues in child welfare and evidence-based practice and has co-authored A Toolkit for Modifying Evidence-Based Practices to Increase Cultural Competence with funding from The Nathan Kline Institute and New York State's Research Foundation for Mental Hygiene. Dr. Zeitlin's research focuses on organizational research, child well-being, cultural competence, and research methods.
ASHA DISCLOSURE:
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Nonfinancial -
Maryrose McInerney
(), Montclair State University, mcinerneym@montclair.edu;
Dr. Maryrose McInerney has been practicing audiology in New Jersey since 1981. Dr. Maryrose McInerney is an associate professor at Montclair State University.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Pamela Aasen
(), SPAN Parent Advocacy Network, paasen@spanadvocacy.org;
Pamela Aasen is a graduate of the University of New Brunswick in Canada with Undergraduate degrees in Early Childhood and Special Education and a Master's degree in Special Education. She brings a wealth of experience professionally and as a parent leader in the deaf/hard of hearing and visually impaired communities. Pam has 25 years experience in special education working with diverse communities in the U.S., Canada and the Dominican Republic. She is currently the Project Director and Family Resource Specialist for SPAN's Early Hearing Detection and Intervention Program’s (EHDI) Mentoring and Family Engagement Project and a Parent-Leader for the New Jersey Center on Deafblindness.
ASHA DISCLOSURE:
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No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Gita Balser
(), Montclair State University, balserg1@montclair.edu;
Gita Balser is a third year graduate student in the Montclair State University Audiology Doctoral Program. Before that, she received a BA in linguistics with a minor in speech language pathology and audiology from MSU. Gita has served as a graduate assistant for Dr. McInerney, and was the events coordinator for the MSU SAA chapter.
ASHA DISCLOSURE:
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