2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
2/27/2017 | 3:20 PM - 3:50 PM | New York State Early Intervention Program and New York State Early Hearing Detection and Intervention Program Data Match | Learning Center
New York State Early Intervention Program and New York State Early Hearing Detection and Intervention Program Data Match
Background
The NYEHDI Program oversees the monitoring and surveillance of 240,000 infants born each year to ensure they meet Joint Committee on Infant Hearing (JCIH) EHDI standards. The NYSEIP is administered locally by the state’s 57 counties and New York City. The New York Early Intervention System (NYEIS) is the repository for pertinent data related to the provision of early intervention services.
A data match between the NYEHDI-IS and NYEIS was undertaken to quantify the number of infants with confirmed hearing loss who were referred to and enrolled in the NYSEIP, as well as the number of infants enrolled in NYSEIP with confirmed hearing loss who were not documented in NYEHDI-IS.
Methods
NYEHDI-IS and NYEIS data analysis files for calendar year 2014 births were prepared using SAS 9.3. Given the lack of a common identifier used across systems, demographic variables were used to conduct a probabilistic match using confidence thresholds. Child-level records in NYEDHI-IS were matched to the child-level records in NYEIS using Link-King V7.1. Matched cases meeting the confidence thresholds were output. Cases that were flagged as potential matches were reviewed manually to determine if they were a match.
Results
Matched child-level data from NYEIS were used to determine the timeliness of referrals and enrollment in early intervention services. Among the 142 infants with documented hearing loss in 2014, 123 infants (86.6%) were documented as referred to the Part C Early Intervention Program. Gaps in services and documentation were identified in both systems.
Conclusions
The data match provided important information for the NYEHDI and NYEIS Programs. Collaborations between the two programs is essential to ensure timely review of the data given the short timeframe of diagnosis, referral and enrollment of infants to NYSEIP. The data match will be repeated routinely, with the goal of performing quarterly matches.
- Describe purpose, goals and outcomes of a data match
- Describe method used to perform a data match
- Describe how a data match could inform both EHDI and Early Intervention Programs about gaps in services and identify opportunities for further program collaboration
Presentation:
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Presenters/Authors
Ken Juhas
(), NYS DOH, ken.juhas@health.ny.gov;
Ken Juhas is the Technical Specialist/Data Coordinator for the Early Hearing Detection and Intervention program with the New York State Department of Health. He has worked in the Department of Health for over 7 years with 5 years' experience working for the Bureau of Early Intervention. He has experience in the development, implementation, and maintenance of various electronic record-keeping systems and assisting in the monitoring of maternity hospitals and birthing centers. He also has experience with data management/analysis and the development of policy and procedure training resources.
ASHA DISCLOSURE:
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Lori Iarossi
(), NYS DOH , lori.iarossi@health.ny.gov;
Lori Iarossi serves as the NY EHDI Coordinator within the Program Evaluation and Evidence-based Practices Unit in the Bureau of Early Intervention. She received her Bachelor of Science in Business Management and Economics from Empire State College. She has worked for the New York State Department of Health for 24 years, contributing to the development of many information systems to foster improved health outcomes for a diverse range of health issues including obesity prevention, HIV/AIDS, and worksite wellness.
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Alexandra Hamburg
(), New York State Department of Health EHDI Program, alexandra.hamburg@health.ny.gov;
Alexandra Hamburg is the Follow-Up Coordinator for the Early Hearing Detection and Intervention program with the New York State Department of Health. She has B.A. in English from the University at Buffalo and is currently working on her M.S. in Health Services Administration at Sage Graduate School. She has worked in the Department of Health for over 7 years. She has experience in data quality review and analysis, and program evaluation. She also has experience in training and customer service; providing technical assistance to healthcare providers in the form of webinars, phone calls, and emails.
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Yan Wu
(), New York State Department of Health Bureau of Early Intervention, yan.wu@health.ny.gov;
Yan Wu is a biostatistician providing data analysis and program evaluation expertise for the EHDI Program. She has a PhD in Biostatistics from the School of Public Health, SUNY Albany, a Bachelor of Science Degree in Biology from Wuhan University in China, and Master of Science Degree in Biostatistics and a Master of Science Degree in Computer Science, from the State University of New York (SUNY) at Albany.
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Kirsten Siegenthaler
(), NYS DOH, kirsten.siegenthaler@health.ny.gov;
Kirsten Siegenthaler, PhD is the Assistant Director for the Policy, Finance and State Systemic Planning Section, in the Bureau of Early Intervention. She has a Master’s of Science Degree in Public Health from Emory University Rollins School of Public Health. She has a Ph.D. in Epidemiology from the University at Albany, State University of New York, School of Public Health. For the past fourteen years, she has worked at the New York State Department of Health to oversee grants, program evaluation, data management and statistical analysis. She is the Principal Investigator for the HRSA Early Hearing Detection and Intervention Grant and the CDC EHDI Tracking and Surveillance grant.
ASHA DISCLOSURE:
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Ying Huang
(), New York State Department of Health Bureau of Early Intervention, ying.huang@health.ny.gov;
Ying Huang is a biostatistician and provides data analysis and program evaluation expertise to the EHDI Program. She has a BS in Pharmacy from School of Pharmaceutical Science, Peking University, Beijing, China, and an MS in statistics from Rutgers, The State University of New Jersey. Ying has been with the Department of Health for 12 months. She has previously worked as a Clinical Pharmacology Scientist at Johnson & Johnson and as a Research and Teaching Assistant at School of Pharmacy, Rutgers, the State University of New Jersey.
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Grace Korompis
(), New York State Department of Health, grace.korompis@health.ny.gov;
Grace Korompis serves as hourly data analyst conducting analysis on Early Hearing Detection and Intervention/Early Intervention data match. She has a Master of Public Health in Health Services Management from the University of New South Wales, Sydney, Australia and a Medical Doctor degree from Sam Ratulangi University in Indonesia, and currently working on her dissertation for her Doctoral in Public Health degree from School of Public Health, the State University of New York (SUNY) at Albany.
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