2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
3/05/2012 | 2:00 PM - 3:00 PM | Collaboration: How to Provide Effective Parent Support Through Collaboration | Grand Ballroom B | 6
Collaboration: How to Provide Effective Parent Support Through Collaboration
We all know that parent support is key to successful intervention for families with children with hearing loss. But how do we get there? What key players do we invite to the table? How do we create a budget? Who writes the grants? Who provides the trainings and creates the parent support program? How do you mold parent volunteers into parent professionals? Who takes care of paychecks and hiring and unfortunately firing? We will walk you through one example of how we made it work in Illinois!
- Attendees will learn how to gather key players around the table to establish a collaborative workgroup that will result in a successful parent support program for their state.
Presentation:
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Handouts:
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Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Ginger Mullin
(Co-Presenter), Illinois EHDI, gk520@hotmail.com;
Dr. Mullin is the Illinois Coordinator of the EHID Program. Instrumental in the development and funding of the state's parent to parent program, she is a strong supporter of ensuring that parents receive the support that they need while on their journey of raising a child with hearing loss.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Karen Aguilar
(POC,Primary Presenter), Chicago Hearing Society, KAguilar@anixter.org;
Karen Aguilar is the VP of Communication Access at the Chicago Hearing Society, a division of Anixter Center, that provides social services and advocacy, youth programing and mentoring, a hearing health clinic and interpreter referral service throughout Illinois. CHS houses the Youth and Family Connections Program and Deaf Mentor Program. Ms. Aguilar's past work includes creating a center based early intervention program for families and providing developmental therapy, service coordination and family support. Ms. Aguilar has a Masters of Jurisprudence in Health Law from Loyola University Chicago School of Law and has trained the legal community on the rights of persons who are deaf or hard of hearing, and educated the Deaf Community about their rights under state and federal laws. Ms. Aguilar has been signing since childhood and is a nationally-certified state-licensed sign language interpreter.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Andrea Marwah
(Co-Presenter), IL Hands & Voices Guide By Your Side, executivedirector@ilhandsandvoices.com;
Andrea Marwah received her BA degree in Psychology from North Central College in Naperville, Illinois. Since her daughter was diagnosed with hearing loss in 2002, she has taken a special interest in educating parents and professionals on matters concerning ADA (Americans With Disabilities Act), IDEA (Individuals with Disabilities Education Act) - special education rights, and advocacy for students who are deaf or hard of hearing. Andrea presents both locally and nationally on matters pertaining to advocacy and IDEA; deafness/hearing loss when combined with other disabilities; the impact of deafness/hearing loss; socialization and many other topics surrounding parenting and working with children who are deaf and hard of hearing. She works for the Illinois Department of Human Services, Illinois School for the Deaf as an outreach trainer and consultant for families and professionals who work with children who are deaf, hard of hearing, blind, visually impaired or deaf-blind. She is also a parent advocate supporting families in Illinois at their child’s IEP meeting or behind the scenes preparing them to attend the meeting and advocate themselves. Andrea is the Executive Director at Illinois Hands & Voices and has been a leader with them since 2010, began as the IDEA liaison for the Guide By Your Side Program in 2009 where she provides unbiased information and one-on-one advocacy and IDEA support to families who have children who are deaf/hard of hearing and is a national trainer for the Hands & Voices ASTra Training Program and a member of the Hands & Voices speakers bureau. She works closely with Designated Service Coordinators providing group training and individual consulting. These are trained individuals who work directly with infants and toddlers in Illinois birth to three who have a diagnosis involving vision, hearing or a combination of both in her state early intervention program. Andrea works as a liaison with the Early Intervention Training Program on issues surrounding deafness and hearing loss. She sits on numerous committees both locally and nationally. Andrea also served for six years on the Advisory Commission on Disabilities in her home town of Naperville, where she lives with her husband Ajay and 3 children Samantha, Julia and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Carrie Balian
(Co-Presenter), IL Hands & Voices Guide By Your Side, IL School for the Deaf, cbalian@sbcglobal.net;
Carrie Balian is the mother of five children. Her oldest, Jack, was born deaf. Carrie and her family reside in Island Lake, IL. She is the Coordinator of the Guide By Your Side program in Illinois. Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie has served or is currently serving as a board member for the Illinois Genetic & Metabolic Diseases Advisory Council, , an editor for the JEHDI publication and participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She also participated as a parent professional on the NICHQ national and statewide learning collaborative teams. Carrie has been recognized and awarded both nationally and locally for her support, commitment and leadership in the field. Her educational background includes a Bachelor’s degree in Marketing and Management.
ASHA DISCLOSURE:
Financial -
Nonfinancial -