2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
3/07/2023 | 2:15 PM - 2:45 PM | Congenital Cytomegalovirus (cCMV) Screening and Follow-up in Minnesota: Process and Lessons Learned to Date | DECC 236
Congenital Cytomegalovirus (cCMV) Screening and Follow-up in Minnesota: Process and Lessons Learned to Date
Congenital Cytomegalovirus (cCMV) Screening and Follow-up in Minnesota: Process and Lessons Learned to Date
Congenital cytomegalovirus (cCMV) is the most common viral infection in newborns. It is estimated that as many as 290 babies out of 65,000 born each year in Minnesota will have cCMV. Children born with cCMV may experience a range of health problems and be at risk for hearing loss. In July of 2021, the Minnesota State Legislature passed the Vivian Act which instructed the Minnesota Department of Health (MDH) to establish a CMV awareness and education program. This legislation also required that the Minnesota Advisory Committee on Heritable and Congenital Disorders review cCMV as a possible candidate condition for inclusion on the newborn screening panel. The committee finished that work and in early January of 2022 made its recommendation that cCMV be added to the screening panel in Minnesota. The Minnesota Commissioner of Health approved the advisory committee’s recommendation to add this condition to the newborn screening panel on January 28, 2022, directing the department’s Newborn Screening Program to begin the steps needed to implement universal cCMV screening. Minnesota is poised to become the first state in the nation to screen every newborn for cCMV. Unlike most of the other conditions on the newborn screening panel, which are inherited typically through the genes of one or both parents, congenital cytomegalovirus is an infectious disease. It will be the first infectious disease added to the panel in Minnesota. In this presentation, we will outline the process to date, lessons learned during the implementation stage, the role of public health in planning, stakeholder engagement, screening method, confirmation testing, audiology follow-up for children with hearing loss at birth as well as those who pass their newborn hearing screening, and connection to local resources such as parent support and early intervention.
- Understand the Vivian Act legislation that instructed the Minnesota Department of Health to establish a CMV awareness and education program
- Understand the Minnesota Newborn Screening new condition approval and implementation process
- Learn about the cCMV implementation planning and coordination efforts between newborn screening and the EHDI program in Minnesota, including lessons learned so far
Presentation:
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Presenters/Authors
Jenna Laine
(), Minnesota Department of Health-Public Health Lab, Newborn Screening, Jenna.Laine@state.mn.us;
Jenna Laine, EdD serves as the Point of Care EHDI short-term follow-up supervisor, Minnesota Department of Health, Newborn Screening
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Darcia Dierking
(), Minnesota Department of Health, darcia.dierking@state.mn.us;
Darcia Dierking, Au.D. holds pediatric audiology specialty certification and has 20 years of clinical and research experience working with both children and adults. Dr. Dierking works with the Minnesota Department of Health EHDI program doing long-term follow-up after children are diagnosed as DHH.
ASHA DISCLOSURE:
Financial -
• Receives Grants for Other activities from HRSA.
Nonfinancial -
No relevant nonfinancial relationship exist.
Kirsten Coverstone
(), MN Dept. of Health, Kirsten.Coverstone@state.mn.us ;
Kirsten Coverstone is an audiologist with many years of service dedicated to early hearing detection and intervention. She grew up in southern Minnesota, earned her masters degree from the Univ. of Northern Iowa and her doctorate from Salus University. Kirsten has actively worked at the local state and national levels to promote universal newborn screening for hearing. As coordinator of the Lions Infant Hearing Program at the University of Minnesota she worked directly with hospitals to establish effective hearing screening programs and audiologists to confirm hearing loss. In addition, Kirsten implemented a statewide hearing instrument loaner program for infants and young children in Minnesota. She is dedicated to making a difference in the lives of children and their families as the MDH EHDI Screening Program Coordinator.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Melanie Wege
(), Minnesota Department of Health - Newborn Screening Program, melanie.wege@state.mn.us;
Melanie Wege is a board certified audiologist who joined the Minnesota EHDI Team after 17 years as a clinical audiologist with a primary interest in pediatric diagnosis and follow-up. Her focus with the Minnesota EHDI Team is to provide education, support, and ongoing quality system improvement strategies to all providers involved with infant hearing screening and follow-up through diagnosis.
ASHA DISCLOSURE:
Financial -
Nonfinancial -