EARLY HEARING DETECTION AND INTERVENTION VIRTUAL CONFERENCE
MARCH 2-5, 2021
(Virtually the same conference, without elevators, airplane tickets, or hotel room keys)
3/04/2021 | 1:20 PM - 1:40 PM | Primary Care Provider (PCP) Outreach: Enlisting PCPs as Integral Members of the Family Support Team | Topical Breakout
Primary Care Provider (PCP) Outreach: Enlisting PCPs as Integral Members of the Family Support Team
Primary Care Providers are critical members of the support team for families who have children with reduced hearing. The importance of this relationship is key. The PCP sees the whole child, tracks milestones, and provides referrals to specialists. They are a trusted resource throughout a family’s journey. They help to direct the family in achieving EHDI goals and in achieving optimal communication and developmental outcomes for children with reduced hearing. This can happen if the PCP is armed with appropriate timely information i to guide their patient’s family. With hearing loss occurring in 1-2/1000 infants, a PCP may not have other patients with hearing loss in their practice and therefore may not have up to date knowledge related specifically to hearing loss. However, they are expected to be the expert by the families they serve. Providing accurate, culturally sensitive information and guidance to parents is essential to avoid delaying their child’s access to communication. Leveraging the strength of the MA Universal Newborn Hearing Screening Program (UNHSP) and the MA American Academy of Pediatrics (AAP) EHDI chapter champion, an individualized outreach program has been developed to support PCPs with children diagnosed with hearing loss. Individualized outreach to over 200 pediatricians has resulted in improved rates of EI enrollment by 6 months of age. Shortly after infants are diagnosed, their PCPs are contacted and provided with the most up-to-date information about the process to achieve 1-3-6 and the resources available to assist individual families. This presentation will outline the PCP outreach program as developed, provide results attained to date, and describe future program goals and objectives.
- Participants will be able to describe the critical role of the PCP in EHDI 1-3-6 goal attainment
- Participants will be able to describe key aspects to our outreach program efforts
- Participants will be able to devise strategies to develop PCP outreach programs other states
Presentation:
23278_13583JenniferFleming.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Jane Stewart
(), BIDMC, jstewart@bidmc.harvard.edu;
Jane Stewart, M.D. is the MA AAP EHDI Chapter Champion. She has been an integral, founding member of the MA EHDI program and has served as a Universal Newborn Hearing Screening Advisory Committee member for many years. She continues to strive to optimize early access to communication for children with reduced hearing. Her publication “Hearing Loss in Pediatrics: What the Medical Home Needs to Know” as authored with colleague Jennifer Bentley, AuD. is referenced below. 1
1 Stewart J, Bentley J. Hearing Loss in Pediatrics: What the Medical Home Needs to Know. Pediatr Clin N Am 66(2019)425-436.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jennifer Fleming
(), MA DPH, jennifer.fleming@state.ma.us;
Jennifer Fleming is the special projects coordinator for the Universal Newborn Hearing Screening Program. In her former career, she was an engineer working in the medical device industry. She now has two children including a 13-year-old son who is deaf. Her new passion is to serve and support deaf and hard of hearing children and their families. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee. She recently completed her fellowship with the Shriver Center’s Leadership Education in Neurodevelopmental and Disabilities Program (LEND) at the University of Massachusetts Medical School.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.